This Video Could Help Save a Little Girl’s Life
“For now, I want to focus on her wonderful personality and life every day,” Glenn O’Neill wrote in his journal the day his 4-year-old daughter, Eliza, was diagnosed with Sanfilippo Syndrome-Type A (or MPS3a) in July 2013. “One of my goals is to keep her happy and smiling for as long as possible. I love her so much.”
MPS3a is a rare terminal genetic disease that will eventually lead to cognitive and physical disabilities. So when doctors gave Eliza’s parents the diagnosis, Glenn and Cara O’Neill began Googling experimental treatment options. What they found was a promising gene therapy trial at National Children’s Hospital in Columbus, Ohio. What they lacked was funding.
“What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life?” Glenn O’Neill wrote in an email to The Mighty. “What would any parent do?”
To find funding, Eliza’s family set out to make a viral video. Below is the result from videographer Benjamin Von Wong. In just over two months, the powerful 3-minute clip has raised more than $900,000 — to fully fund the trial, that number needs to reach $2.5 million.
Let us help you. Like us on Facebook.