Remember my son TJ’s fantastic start to high school? Where he was so happy and excited, and my husband and I breathed a huge sigh of relief? Remember that?

Well, we shall now refer to that as “the honeymoon period.” And baby, it’s over.

How could I have forgotten about the honeymoon period? That amazing week or two when I actually think we’re in the clear?

Right after the honeymoon period comes reality. And it comes crashing in. And every time it comes crashing in, I wonder to myself, How could I have been so foolish to think we were all set?

After the honeymoon period is where the real work begins.

Last week I met with TJ’s new school team – his teachers, his instructional assistants and his special educator, who I think we should now refer to as our saving grace.

Talk about a rude awakening. TJ’s behavior in class had regressed to that of his former sixth-grade self.

That’s when the light bulb went off – he’s stressed. I had no idea how stressful this new school beginning was for him. TJ doesn’t communicate these feelings with words as much as he does with his behavior. He would never admit his stress level to anyone, as he’s so eager to please everyone. But after gathering all the input from the school staff, the problem was clear.

I was sad. But only for a second. Then I was relieved…thank God we have the problem targeted. Now we can start to solve it!

And solve it we are, as a team. Clear communication and lots of it. New folder systems so homework assignments are not missed. Bi-monthly meetings with his special educator so we can touch base on our home and school progress. Emails, emails, emails.

That time after the honeymoon period used to make me feel so sad, as if I had somehow failed as a parent. Now I am empowered by it, fueled with information to give my boy the greatest chance at success.

I guess you can say we both have grown a lot, my TJ and I. And we’re both still learning. Every day.

This post originally appeared on I Don’t Have a Job.

Read more from Lauren Jordan on The Mighty:
When I Had to Follow the Same Advice I Give My Son With Autism
What This Popular Story About Disability Doesn’t Tell You About Disability

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“Daddy, I want a baseball bat shirt,” Owen tells Scott, as he is getting ready for bed.

“You have a Yankee shirt, buddy. You wore it today,” Scott replies, helping Owen tug on the pants to his Batman pajamas.

“No, a bat shirt,” Owen persists.

I hear them from the other room and call in to Scott that I think he means a jersey, like the ones worn by the players he saw at the game today. On our walk back to the car from the stadium, Owen had declared, “When I am a big, big boy I play baseball on ‘dis team, here.”

Scott pulls Owen’s pajama shirt on, careful to ensure that the black cape affixed with velcro remains on Batman’s back, and asks “Do you mean a jersey? Like the players wore?”

“Yessss!” Owen exclaims, holding out the “s” with his enthusiasm, though is sounds more like “Yethhhhsss”, clearly thrilled that his message has gotten through.

And more messages are getting through every day. From both sides. We understand more from him, he understands more from us. And it is wonderful and enlightening. And every single day I find myself eyes-widened, repeating some phrase he has just uttered to the person who has served as witness to it right there beside me. At times it is Scott, or our beloved babysitter or one of Owen’s therapists. It is a familiar expression for me now, eyebrows raised in happy shock, the kind of thing that I hope does bring me wrinkles as a result of skin-stretching overuse.

I have always loved my boy. I have always wanted to take care of him – to protect him and do whatever it was that I could to help him, to make sure he was getting what he needed – at first to survive and then to thrive. I have always felt connected to him. Whether it’s due purely to maternal instinct, or how affectionate and cuddly he is or how much we are alike, I don’t know. It was agreed upon long ago that our careful, introverted, thoughtful Parker is very much her father, and that Owen – extroverted, impetuous, impish to the core – is so much like me. But it doesn’t really matter why, does it? We don’t question why we feel connected to our children – only the ways that we don’t.

I have always loved my boy.  But I have not always known him.

And that is hard to admit. And likely hard for others to comprehend, to relate to.

But it is my sad, honest, raw truth.

I have always known Parker. Every cell in her petite little body is familiar to me. I can tell you how she will react in any given situation, how to calm her down and how to rile her up. I can tell you which shirt she would choose to wear in a fashion lineup. I can tell you when she needs to be left alone and when she needs to be cuddled. I know her real hurt cry from her fake attention-seeking cry. I know the things that fill her with pride and those that deflate her confidence like the proverbial helium-filled balloon whose end has been released. I know the point to which I can push her to try something new in order to show her she is more capable than she allows herself to believe and when not to push, to allow her to hold back, to wait it out until she is more comfortable.

When Owen announced his larger-than-life intention to play baseball for the Yankees when he grew up, I asked Parker what she wanted to be.

“I want to work at the stadium. In an office.” Practical, sensible. Scott’s daughter to the core.  Scott and I smiled at each other over our children’s bobbing heads.

She has always been an open book to me, while he has been something more akin to those faux leather-bound tomes found in fancy libraries in historical homes  we have visited from time to time. If you pull one off the shelf – these books with titles like “The Call of the Wild” or “Anna Karenina” or “Great Expectations” — and you attempt to thumb through them, you will find your thumbs useless, unable to budge the sealed pages. What should be familiar – you know these books, they look familiar to you, you should be able to read what’s between the covers of these classics you hold in your hand – you are somehow no longer privy to.

Owen has been a closed book – though he has a cover I recognize and can maintain and keep clean and take for careful restoration when needed. I can admire what is before me, what I hold in my hands. I can marvel at what I am sure is something wonderful inside, even if I have not yet been granted access. But I do not know for sure what is at its core. At his core.

Until now.

Until this summer when something inside him cracked open. Until something clicked, and opened and began to blossom before us all.

And I have no idea why or how or when exactly this happened. And I’m honestly not even sure if I care.

Because some things should not be analyzed – only enjoyed. Sometimes you read “The Age of Innocence” to discover themes, to analyze the imagery within – and sometimes it’s purely to allow yourself to get lost in the gorgeous and well-told story as it unfolds, to soak in all of the wonderful language, the beauty of the words kept between the protective covers of its now-cracked binding.

I am putting aside my typical over-analyzing, questioning self for now. I am enjoying the open book my boy is becoming, even if he is just sharing this new narrative of his on a page-by-page basis. It is a cliffhanger, and I am hooked on every word.

Great Expectations indeed.

This post originally appeared on Jamie Krug’s personal website.

More from Jamie Krug on The Mighty: I Thought We Had More Time

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Kerry SF Picture

My name is Kerry, and I have Pervasive Developmental Disorder – Not Otherwise Specified (PPD-NOS).

This means I have autism.

This does not mean I am autism.

This means I see the world sometimes in a different light.

This does not mean I’m in the dark.

This means from time to time I may have a difficulty expressing my emotions.

This does not mean I don’t feel.

This means when I communicate, I do it with a style that is my own.

This does not mean I don’t have a voice.

This means I may have sensitivity when it comes to a certain feel or touch.

This means sounds can sometimes make me feel uneasy.

This does not mean I’m deaf or hard of hearing.

This means I can often focus on certain interests for a long period of time.

This does not mean those are my only interests.

This means I’m the only person in my family to have this.

This does not mean I’m alone.

This means I may have 500 other symptoms/capabilities that are different than yours.

This does not mean I’m any less of a person than you are.

My name is Kerry, and regardless of what PPD-NOS means or doesn’t mean, autism can’t define me; I define autism. I can only hope those individuals, regardless of being autistic or not, can define their lives and their journeys in the way they see it.

This post originally appeared on the SF Gate Blog
and later on Autism Speaks.

Greg Krueger has built something truly incredible for his furry friends to enjoy. Were I a cat, this is certainly where I would want to live.

His endearing fondness for the frisky pets inspired him to spend more than 15 years turning his house in Minnesota into a feline fantasy playground, complete with ladders, ceiling catwalks and secret hideaways, according to KHON 2 News.

The 49-year-old, who was only recently diagnosed with Asperger syndrome, relates to his cats easily and loves them unconditionally. With a home like that, those kitties must love him right back.

Check out his awesome creation in the video below.


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We were at the beach last week. My wife and I were standing ankle deep in the water watching our son, Eric, having a ball swimming and jumping over the waves. A group of three other kids ran up and started playing, splashing and chasing each other in the water. Eric gave them a passing glance and went about his business.

I saw it happen, as I’ve seen it happen countless times in the past. My wife has gotten skilled at crying behind her sunglasses so others can’t obviously see her pain. But I saw it. I have learned that there are times when there is nothing I can say or do. I just have to let the moment happen and dissipate naturally. That’s what I did. It took a few minutes. Then the moment lifted, and we went back to our quiet family swim in the ocean.

I think these moments are easier for me than for her because I am not a social butterfly. She is. Her greatest pleasures in life have come from gatherings with friends and social experiences with family. My greatest pleasures have come from quiet solitude and peaceful reflection by myself or with my wife. She sees my son’s lack of interest in his peers as him missing out on pleasure. I understand how she can see it that way. But I see it as simply taking my own introversion a step further. I want her to know that while he obviously needs to learn social skills and to be nudged out of his comfort zone into interacting with his peers, he is not necessarily deprived of pleasure from his lack of interest in these relationships.

I often joke that I could do a 10-year prison sentence with ease. I would be just fine stranded on a desert island for a while. For me, social interactions are work. It’s different for her. Her love for her son is one of God’s wonders. I want her to understand that he will be OK. I want her to trust that smile on his face when he is doing his own thing and not to feel sorry for him because he isn’t interested in chasing and throwing sand at his cousins. I want her to understand that, in so many ways, he is me… and look at the happiness I have found… with her.

The author hugging his wife after participating in a race

This post originally appeared on Bacon & Juice Boxes: Our Life With Autism.

PB200076_1 My beautiful babies are about to turn 10 and 8. This brings me to a time of serious reflection. I’ve been watching the endless slideshow of photos on our computer, sobbing, remembering, loving, feeling grateful — all those emotions and more, at once.

It makes me remember our path towards an autism diagnosis for “Big Brudder.” You may or may not know that Big Brudder was born with a cleft lip and palate. We thought this would be our primary area of concern for him. For a long time it was. It still certainly occupies quite a bit of our parental thoughts and concerns, but little did we know, autism would become our main focus.

Big Brudder from very early on only liked to be held in a certain way. I would describe it as “snug.” He loved being swaddled and held firmly. He was always alert – looking around and sometimes through you it seemed. He progressed normally and hit his milestones on time, mostly. Except language. Here he was hyper verbal. He didn’t really babble much, perhaps because of the speech therapy he received for his cleft lip and palate. Or, it could be that we didn’t baby talk. He spoke in complete sentences and loved showing what he “knew,” which was a lot.

Beginning at his two-year checkup, I asked every year about autism. He was a toe-walker, he had a compulsion about lining up his toys a certain way, he would get lost in his own little world for hours at a time and not hear us, his food aversions were severe and the meltdowns… they could last for days. I was told every year, “He’s too social.” They didn’t see him at home. Yes, he interacted with us, but it wasn’t reciprocal. Until we had the “Wee One.”

The other day, the Wee One was in the midst of a rough patch. We talked through it, and then I told him this: “You know how Big Brudder sometimes (OK, a lot of times) seems lost in his own thoughts? Well, when he was almost 2 and you weren’t quite born yet, it was much more severe. We could call his name, we could talk to him and it was as if he couldn’t hear us. All of that changed when you came in to the world. Suddenly, Big Brudder was connected to someone in a way we hadn’t seen yet. He loved you more than he loved anyone before. I tell you this not to give you a burden but a gift. That is how much you are loved.”

The Wee One had tears rolling down his cherubic cheeks. I said, “Baby, what’s wrong?” The Wee One replied, “They are tears of joy. I want to tell this story to Big Brudder.”  To him I said, “Baby, this story is for you to hold in your heart. Hold it close now and always. Remember it when Big Brudder doesn’t seem to be listening. You are his best friend, forever.”

Happy Almost-Birthday, my loves.


This post originally appeared on Autism in Our House.

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