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The Beautiful Way This Couple Responded to News That Their Unborn Child May Die

Jenna and Dan Haley expected to spend a lifetime taking their soon-to-be son, Shane, to see and do all their favorite things. But, after their baby was diagnosed with a  fatal condition making it unlikely for him to survive long after his birth, they decided to make the most of the precious time they have with him.

Shane Michael Haley, who is due next month, was diagnosed with anencephaly two months into the pregnancy, according to the Prayers For Shane Facebook page.

Anencephaly is a serious neural birth defect where a baby is born without parts of the brain and skull, according to The Center For Disease Control and Prevention. About one in every 4,859 babies in the United States will be born with this condition, and almost all of them will die shortly after birth.

Knowing this, the Haleys decided not to waste a single moment of the little time they’ve been given with their son. They made a bucket list for Shane and created a Facebook page for friends and family to follow them on their adventures. In just over a month, the page has already gained nearly 170,000 followers.

“Shane has already proven to us that each day must be lived to the fullest and that is exactly what our little family is doing,” the page reads.

Shane’s bucket list contains all sorts of sights and activities that his parents wanted to be sure to share with him, including visiting the Empire State Building, the pier in Wildwood, New Jersey, and attending a Zac Brown Band concert, ABC reported.


“Most families wait until their baby is born to start making memories and traveling to places with them,” Dan Haley told the outlet. “We knew that our time with our son could be very limited, so we wanted to make the most of the time that we had with him.”


The young couple has demonstrated truly stunning courage and positivity in the face of tragedy.

It’s the hardest thing in the world, but you can make it through,” Jenna Haley told NBC. “We’re his parents and we’re going to take care of him as long as we can.”


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