November 19, 2014

Our Blended Family Introduced Me to the World of Autism

Contributor

20141108_110958-1 I always wanted a simple life.

I raised my son, Brian, alone for eight years without the help of his biological mother; it was tough at times. Looking back through all our struggles, I wouldn’t change the time of frozen meals and Saturday morning wrestling matches for all the money in the world.

I wasn’t looking for love — actually, I figured I wouldn’t meet anyone until my son was in college. All my time and effort was going into raising him to be a good person. When my son turned 10, I unexpectedly fell head over heels in love with Lisa, a single mother raising her young son, Nicholas, who has autism. I had no clue what autism was, let alone how to connect with Nicholas. I had to find ways to enter his world, which required great persistence.

In 2014, I married Lisa, and we became a blended family. My determination to enter Nicholas’ world paid off. The payout has been a bond — one I could have never imagined having with a child that wasn’t mine. Nicholas and I don’t have long conversations since his speech is limited, but sometimes words don’t need to be spoken. Sometimes you just connect with someone.

20141031_182107 Halloween 2014. Nicholas wanted to go trick-or-treating as the “Annoying Orange.” He said, “Frank, you be Charlie Brown.” Nicholas was a little apprehensive about going house to house, so I got my own Halloween bag, put on my Charlie Brown shirt and stood right next to him with my bag open collecting candy. We got a few odd stares from the neighbors we didn’t know (wondering why a grown man was collecting candy), but Nicholas was happy, and that’s all that mattered. I never care what others think about us. Nicholas is a person too; he deserves to have a happy Halloween just like all the other children in the neighborhood.

Brian is no longer my only child, but he took on the role of a big brother effortlessly. Brian is Nicholas’ best friend and partner-in-crime. Brian doesn’t need a lot of words from Nicholas either; he communicates for the both of them, and in turn, Nicholas trusts and adores him. It’s a dream come true, to meet the partner of your dreams and have your family blend so perfectly.

20141108_132546-1 The simple life I thought I always wanted is far from where I am now. Autism has taught me about meltdowns, sensory issues, speech delays, wandering — the list goes on and sometimes changes daily. We now adhere to schedules and giving Nicholas advance notice to prepare for upcoming outings. Autism has changed my life, but I love my son just the way he is. His pure heart and innocence is something you don’t see in many children.

Promoting fathers to step up and celebrating the ones that do have become an important part of my life. With the partnership of a few good dads, www.thegoodfathers.net was started. Our mission is to encourage the relationship between a father and child. Our goal is to recognize the men who make a difference in the life of a child, not just today but every day. We’re selling T-shirts

The Good Fathers supports St. Jude Children’s Hospital as a Partner in Hope and TACA (Talk about Curing Autism.) A portion of every sale benefits both of these charities. Our goal is to have the website go live Friday, Nov. 21. We hope to promote our mission and help children in need.

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night.

Find this story helpful? Share it with someone you care about.

Frank McHenry and his wife, Lisa, have four boys in their blended family. Frank has custody of his 15-year-old son, Brian. Lisa has two older children, Michael (23) and Jonathan (21), and a 10-year-old son, Nicholas, who has autism. They treat their family as one unit, not his and hers. They all pull together and work with Nicholas to help him function the best possible way in this crazy world. They may not always do things the right way but they always do them together.  They laugh often and promote Nick’s little quirks instead of treating him as he was different.  To them he is just their Nicholas.
Read more
Contributor
Share
5
3K

Related

Rebecca Masterson
Autism Spectrum Disorder

I Would Have Made an Awesome Soccer Mom

I had a few hours of free time on Sunday, and because I lead a very sexy life, I used the time to clean out my pantry. It’s a little room off my kitchen that has, over the last six years since my son came home, transitioned from a cute, chandeliered office/pantry to an enter-at-your-own-risk-I-can’t-be-responsible-for-what-falls-on-your-head [...]
Share
Sarah Porath
Dup 15q Syndrome

When My Daughter Graduates High School, This Is (Part of) the Speech I’ll Make

When I was much younger, I used to practice my Oscar speech. You know the one: “I’d like to thank the Academy…”  These days I dream about a much different speech. My husband and I often talk about how cool it would be to throw a party when our daughter graduates from high school. We’d [...]
Share
Meredith McGee
Autism Spectrum Disorder

Why I Believe Only Special People Parent Special Needs Children

Recently, a longtime friend reached out to me to let me know she was expecting a Sensory Processing Disorder diagnosis for her kiddo. She was feeling all of the things you feel when you are told your child is different, and she was wondering if I had any suggestions or helpful tips about how to begin [...]
Share
Jill W.
Other

To the Stranger Who Sits Near Me During My Daughter’s Swimming Lessons

Dear familiar stranger, I don’t know your name. You don’t know mine. You don’t know my daughter’s name or her struggles, other than my quick explanation: “she has developmental delays.” And I don’t know your grandson’s name. But every week we sit there among dozens of other strangers and watch our little ones through the [...]
Share
See More
Karen Fikar
Autism Spectrum Disorder

Dear Younger Me, Here’s What Happened to Your Son Who Didn’t Speak Until He Was Nearly 4

Every year I like to post something for my family and friends, to share what I’m feeling inside as we raise our son with autism and our daughter, who was diagnosed with ADHD and severe OCD. The one thing that resonates each year is that I’m lucky to be on this road. It’s paved with [...]
Share
Carrie Cariello
Autism Spectrum Disorder

This Is How I Feel About 40

About ten years ago, I watched an episode of Dr. Phil that changed my life. Well, maybe not my life exactly, but it changed a lot about how I feel about myself, which for most women is pretty much the same thing. Dr. Phil was talking with a young couple about to get married. The [...]
Share
Melissa McGlensey
Other

To Several Strangers I Saw on the New York City Subway, Thank You

Although I’ve been living in New York City for over 6 months now, I still get overwhelmed by it — the pushing and shoving on the subways, the constant vigilance, the dirt and grime and overcrowding. But every once in a while a moment pulls me out of the day-to-day chaos and forces me to [...]
Share
Tricia Klein
Autism Spectrum Disorder

My Kid Is the One Trying to Get Inside Your House This Halloween…

It happens every year. There’s a lot of prep and apt timing on our part of getting the costume on (and feeling right). Sometimes only half a costume actually gets worn. There are no wigs, masks or make up. Usually our prep includes several weeks of practice trick-or-treating at both our home and therapy. Due [...]
Share