This Little Boy May Convince You to Help Cure 'the Most Insane Skin Disorder You Could Imagine'
“Listen, guys, you should all give money so we can cure EB forever,” 7-year-old Mikey Fullman says in the video below. Hear him out.
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder that affects only 30,000 people in the U.S., according to the EB Research Partnership. Its symptoms include severe blistering and tearing of the skin, disfigurement and wounds that never heal.
“It’s about the most insane skin condition you could imagine,” Pearl Jam frontman Eddie Vedder says in the video below. Vedder and his wife, Jill, have started a “Cause the Wave” campaign with the EB Research Partnership. Their goal is to raise $5 million for EB research.
In the three-minute video below, Fullmer, Garrett Spaulding and Jennifer Innes sit with Vedder to better explain what their condition is and how important research funds are. Their input is worth your time:
If you’d like to make a donation to EB research, head here.