My Son Taught Me What It Means to Be Mighty

What does it mean to be mighty? It could be an adjective that means having superior power or strength. This definition fits my son, Kreed. I’ve never met anyone stronger. I could never imagine the trials he faces on a daily basis, and he faces them with smiles like this:

teen smiling

“Mighty” can mean to be of great size. Why then, they must be referring to Kreed’s mighty heart that beats strong (and, well, a little fast thanks to dysautonomia). Or maybe you mean “mighty” as an adverb — to do something to a great degree. That’s surely Kreed because he’s a mighty courageous boy.

Kreed is mighty in every sense of the word. The days Kreed smiles like this:

teen smiling

It amazes me. He has daily and constant pain due to his nerve damage, headaches, seizures, the bazillion times I’ve had to stick him in the finger to take his blood sugar, and the blood pooling in his legs. He’s lived his whole life without speaking or moving his body how he wants. Can you imagine? You have to just exist and do what other people say and want you to do. Without a voice. Without a choice. Except to have behaviors that make you refuse choices. That get you labeled as “non-compliant” because you have no voice. What a cruel joke. They just didn’t realize how mighty Kreed is.

We’re lucky Kreed has found his voice with his Dynavox. I can’t believe we  have some conversations now. It’s been a long and mighty road to get to here. Kreed has astounded me with his ability to adapt. As he continues to face incredible medical odds, I’m always proud at how mighty he is in every way. He loves. Mightily. And forgives. We can have a bad moment, but in the next one, he can be all kisses. He’s taught me to live in the present, and it’s changed our life incredibly. We don’t stay in anger or sadness.

Our life is about making Kreed’s life happy. It’s such a rocky and heartbreaking road in so many ways. But it’s my privilege to raise Kreed and show the world what’s possible when it seems everything is impossible. To show what mighty hearts our children have and how much they have to teach us. I guarantee it’s far more than we have to teach them. I’ll say it again — Kreed has made me a far better person than I ever would have been without him. Period.

Editor’s note: It is with a heavy heart we share the news that Kreed passed away on May 8, 2016. Our hearts are with his family, and we’re so grateful to help keep his memory alive on our site. He was truly one of the mighty.

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