5-Year-Old Figures Out Incredibly Sweet Way to Help Cure Angelman Syndrome

When 5-year-old Na’ama Uzan learned that part of the reason researchers had not found a cure for Angelman syndrome was because of lack of funding, she decided to take matters into her own hands.

Last summer, Na’ama, who lives in Toronto, started a lemonade stand to raise money that will go toward researching a cure for the rare neuro-genetic disorder afflicting her older brother, according to CBC news.

“My brother, Nadav, has Angelman Syndrome, so we’re trying to raise money for a cure so he won’t have it anymore,” Na’ama tells CBC News in the video below.

Na’ama’s ambitious project took off last year with incredible force. Her endeavor has prompted many others to join her, transitioning her original lemonade stand into a community-wide fundraising effort. Since Na’ama first opened her lemonade stand last June, she and her community have raised more than $19,000 that will go to the Foundation for Angelman Syndrome Therapeutics, The Canadian Jewish News reported.

Na’ama isn’t ready to stop there. She plans to resume fundraising on January 29, this time through a hot chocolate stand.

“This has turned into something so enormous,” Na’ama’s mother Ruchama Uzan said, according to The Canadian Jewish News. “When I was 5, I wasn’t doing anything like this!”

Learn more about Na’ama’s project in the adorable video below.

For more information about Na’ama’s project or to participate, please email the Uzan family at [email protected] or visit their Facebook page.

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