For a Mom or Dad Going Through One of Down Syndrome’s Hard Days…


Some days are really dark being a momma to a child with Down syndrome, congenital cataracts, congenital heart defects and a slew of other special needs. Some days you’re beyond frustrated because hours upon hours are spent in therapies and appointments. Some days you’re so desperate to just hear the word “momma” instead of teaching her how to sign. Some days you’re jealous of other kids lapping your little one in milestones and accomplishments. Some days tracing the scars of their many surgeries almost chokes you in fear like the days they happened. Some days you can’t believe the ugly in the world when people say/write/think, “Why didn’t she abort,” “Down syndrome babies are a drain on our taxes,” or “Their lives are useless.”

Some days are thankfully just that… Some days.

Most days are filled with so much happiness because of contagious laughter. Most days are filled with pride at the determination in accomplishing everyday challenges. Most days are drenched in joy because what really matters is what is being presented. Most days are filled with a deep thanks because your child survived and is showing you and others just how much purpose their lives hold.

Most days are filled with nothing but gratitude because you realize most days trump some days. And some days make most days that much sweeter.

SR-6690

SR-6691

SR-6696

SR-6694

SR-6689

This post is to celebrate all the Brave Heart Warriors out there and celebrate CHD Awareness WeekMy little girl’s heart surgery was life changing and something that will stay with me forever. To those who are fighting, those that didn’t make it and those going through it, Fight on Brave Ones, fight on.

All outrageously adorable photos by Eden Grove Photography.

This post originally appeared on Happy Soul Project.

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night

TOPICS
JOIN THE CONVERSATION

Related to Down Syndrome

The Playdate My Son (and I) Will Absolutely Never Forget

So, I love to talk about my son, Caleb, who has autism. I love to talk about our pride in his accomplishments, his amazing journey contained in only eight years on this earth, his great love of the world and the marvelously simple yet complicated way he sees things. But right now, I don’t want to [...]

Husband Says First Words to Wife 15 Years After ALS Took His Voice

“Don’s Voice” is a heartwarming look at the true story of Don and Lorraine Moir, a farm family debilitated by amyotrophic lateral sclerosis (ALS). Don and Lorraine married in 1989. Six years and three children later, Don was diagnosed with the progressive neurodegenerative disease also known as “Lou Gehrig’s disease.” Week by week, Don lost more [...]

24 Mighty Kids Prove You Can Say ‘I Love You’ Without Words

Words are overrated. At The Mighty, we know there are so many ways to express yourself without speaking. We wanted to know how your children and loved ones say “I love you” nonverbally, so we asked our readers to share some of their stories. Here’s what you had to say: 1. “He used to take my face in [...]

This Up-and-Coming Comedian Delivers His Punchlines Without Saying a Word

This uproarious stand-up comedian from the U.K. doesn’t even need to open his mouth to get an audience to double over laughing. Lee Ridley, 34, who lives in Newcastle, U.K., was diagnosed with cerebral palsy when he was six months old, and his mouth and tongue muscles are too weak for him to speak, The [...]