Why I Want the World to See My Daughter's Experiences With Autism


There was a woman who ostracized me for not keeping my child private. But yet she posted the video on her page along with many other articles of other children with disabilities all over her page. Why did she single me out? I don’t know. But I stopped and thought about it.

This is why I “real share”: autism isn’t going anywhere, and awareness is needed as numbers rise. How will people become aware if they don’t really see it? It’s not like Rain Man or any other stereotypes that autistic people get… I show and keep it real! And I don’t feel like I’m doing my job as my daughter’s advocate if I don’t keep it real!

I’m not afraid. I posted two awareness videos, and one of them helped a mother see that her child was like mine and, after seeing my video, she’s now getting her daughter evaluated. I’m about EI Awareness and if I can help one parent get his or her child evaluated, it’s worth it.

So, no, I’m not scared. I was at first and debated whether or not to post, but when it was published, parents were thanking me and saying they felt alone and that my video made them feel like they were not so alone. Before my page, that’s how I felt… alone. Now I’m not. I’m helping people and it’s helping me. I’m spreading awareness!

I have a college student doing a Powerpoint presentation on Zoey’s video singing “Twinkle Twinkle Little Star” to help bring awareness about music therapy. I show it ALL! Why? Because I’m an advocate, and not just for my child… for every child. If we all just hide away without showing the reality of autism, then we are not advocating awareness.

Autism is here… it’s real… and it’s time to accept it!

I share it all for her. I want her to look back and see how she fought and how truly amazing she is. Yes, there are times of frustration or meltdowns… but then there are the moments that I can watch over and over and cry because my severely nonverbal child sang “Twinkle Twinkle Little Star.”

That gives me hope and I want others to see it and have that same hope!

Follow this journey on Melissa’s Facebook page.

JOIN THE CONVERSATION

Related to Autism Spectrum Disorder

two boys standing in front of brick wall

To the Friend Who Doesn't See My Son as 'the Weird Kid With Autism'

They say if you have one or two really good friends, you’ve got it made. Well, if that’s true, then TJ, our 14-year-old with autism, has got it made. For your typical 14-year-old, having a friend means hanging out at each other’s houses, texting, chatting on the phone, going to the mall and going to [...]

What It’s Like to Grow Up With Autism

What is autism to me? I was diagnosed with autism at the age of 2. Though some people consider that to be far too young for a diagnosis, I think I’m one of the lucky ones. Some people, especially girls, don’t get a diagnosis until much later in life (and may still not have one) [...]

Why I've Decided Not to Attend My Son's High School Graduation

It’s that time of year again — prom season. It’s the time of year when I avoid my Facebook newsfeed like the plague. The pictures of my friends’ teenagers eat away at me. I look at my friend’s son who was born around the same time as my son, Mike, and feel the giant gap between [...]

19 Things Only Special Moms Understand

A group of strong, intelligent, courageous, loving, special needs mamas wrote these 19 things that only a special mom would understand. One of their most important qualities is that they have a sense of humor… something that is a requirement for sanity for the special needs parent. 1. If you’re standing in line at Target and [...]