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What I See When I Look At My Husband With Muscular Dystrophy

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When we said for better or worse, in sickness and health, I meant it.

When we married, we could never possibly imagine that you would be diagnosed with limb-girdle muscular dystrophy. When suddenly you were tired, your muscles grew weak, and your back was always in knots, we knew something was wrong. After all the doctor visits, referrals, surgeries, and painful tests we knew our future would change. Through it all, your smile, the way you constantly make me laugh, the way you make me feel safe and loved has never changed. Even after your diagnosis.

I know some days it can seem daunting and the obstacles may appear too tall. But together, we will overcome those obstacles. You may look in the mirror and see a skinnier version of who you once were, or someone who tires easily and can no longer chase me around the house, but I don’t see it. When I look at you I see your heart, your endless love for helping others, your ability to make everyone feel better. I see an amazing father who loves our boys more than anything. I see my husband who is the same man I stood next to on our wedding day.

I don’t look at you and see muscular dystrophy. I look at you and see the incredible man that you are. You are not your disability. Your future is bright and your strength shines from within you. When I vowed to be your wife, I vowed that all of me would be with all of you. I am here to help you over those mountain-sized obstacles and hold your hand when we go on walks, pick you up when you have sat too long on the floor, or support you when you have to climb stairs. The only thing that matters is that I am with you. I will hold you in my arms and run all around the world for you. Together we will be strong. My heart is ever at your service.

The Thames family -- parents and 2 boys outdoors

The Mighty is asking the following: What do you want your past, current or future partner to know about being with someone with your disability, disease or mental illness? If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Submit a Story page for more about our submission guidelines.

Originally published: April 12, 2016
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