17 Photos That Reveal What Needs to Be Said During Dysautonomia Awareness Month
During the month of October, the color pink fills the stores for Breast Cancer Awareness Month, which is amazing, but there is another awareness color people should be seeing, too, and that’s turquoise. Turquoise is the color for dysautonomia awareness, and October is Dysautonomia Awareness Month.
The sad truth is, there aren’t a lot of people who know about it, or even what it is, and what’s even sadder is that many doctors aren’t even taught much about it in medical school, so the average time it takes to get diagnosed is six years. So many people struggling to get a diagnosis are told nothing is wrong with them and because of that they start to lose hope and begin to doubt themselves. They’re severely ill but doctors don’t listen. I went through this, and even after my diagnosis of postural orthostatic tachycardia syndrome (POTS) I still go through this from time to time. We need more awareness so people can get a diagnosis faster and so doctors can understand sometimes the problem isn’t always visible right away. Dysautonomia has taken so much away from my life and I’ve had no choice but to change and try to adapt to my new limitations, but it’s hard and I’d be lying if I said that it wasn’t. It’s so isolating when you’re battling an illness that most people don’t even know or understand, including doctors.
I don’t want anyone to lose hope or feel alone because of this, though. We are all in this together and I have hope that one day everyone will know what dysautonomia is, and I have hope that one day there will be a cure. In my darkest moments, my therapist used the word “hope” and that word has had the biggest impact on my life, because as long as I’m still here, breathing and fighting, there is hope. That is what inspired me to do this project — to show others that there is always hope.
For more information about dysautonomia and POTS please visit The Dysautonomia Project.
Thank you to my two friends Killian and Allison for helping me bring this idea to life and for inspiring me to think outside the box.