7 Things to Do When Your Kid Points Out Someone’s Differences


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5 Songs to Help You Through the Tough Times With Apert Syndrome

Famous musician Elton John once said, “Music has healing power. It has the ability to take people out of themselves for a few hours.” Music has definitely been a constructive outlet for me to help get me through a rough day. There have been playlists for songs to get you through depression, songs to get [...]
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When My Son Said He Didn't Want Others to See His Scars

Lisa’s son’s hands. Several months ago, my 14-year-old son (born with Apert syndrome), made a comment to me about the scars on his hands and feet. I don’t remember his exact words, but they were related to his self-consciousness of his scars showing and the fact that he didn’t want people to see them. This led [...]
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What Doctors Fail to Tell You About Apert Syndrome

When Sarah was about 2 weeks old, we took her to see the geneticist for the first time. I was still in a postpartum stupor, barely able to comprehend the madness of diagnostic tests, blood draws, and specialists thrust upon us. The office door beheld the title of our region’s genetics specialist, including “genetic counseling.” Breathing a [...]
Alpha Phi Omega.

How Joining an Inclusive Fraternity Helped Me Gain Confidence With Apert Syndrome

I recently joined Alpha Phi Omega, a co-ed fraternity organized to provide community service, leadership development, and social opportunities for college students. It was not the easiest thing for me to do. It’s been widely recognized as one of the largest groups on my university campus, with over 100 members. It’s a lot to take [...]