When I Was Challenged to Share How I Really Feel About My Ehlers-Danlos Syndrome

One week ago, a writer asked me, if I was able to pack my feelings about my disabling condition in only 200 words. My emotions about how it feels to be young and chronically ill, irrationally and without any facts. Without thinking about how I might present myself to the public. Me? Appearing weak? Was … Continue reading When I Was Challenged to Share How I Really Feel About My Ehlers-Danlos Syndrome