25 All-Too-Relatable Moments of Life With Chronic Illness


There are certain things that only people with chronic illness can truly appreciate. I have lived with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for over two years now and I have come to know some experiences of chronic illness all too well. I have also come to know I am not alone in these experiences and sometimes humor is a good way to communicate to others as well as personally deal with how you are feeling. So, I’ve put together a list of just 25 of the many things people with chronic illness face on a weekly basis.

1. When you receive another diagnosis, a.k.a. something else is wrong with you…

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2. When you’re sitting in the doctor’s waiting room rehearsing what you are going to say…

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3. When chronic illness takes over your life…

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4. When you have a flare-up after a few OK days…

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5. When it feels like your body hates you…

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6. When you try to explain your story to a new doctor…

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7. When you’ve had a long day and just really need to be alone…

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8. When you go for a massage to relieve the muscle pain…

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9. When the doctor asks if you’re feeling any better and you’re just like…

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10. When you are out but you totally overestimated how much you could handle for the day and immediately regret it…

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11. And then when you finally get home and you’re like…

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12. When the brain fog takes over…

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13. When the doctor tries to tell you it’s another virus…

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14. And when you show up two weeks later like…

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15. When you’re trying to be positive about the doctor putting you on more meds…

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16.  When someone asks you how you are doing…

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17. When you’re waiting for enough energy to do anything…

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18. When you’re having a bad flare day…

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19. But then you realize how hardcore you are for fighting chronic illness every day…

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20. When you remember that you forgot to take your meds…

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21. And when the meds finally kick in…

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22. When you just give up on your to-do list for the day and watch TV…

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23. And then give up and eat whatever you want…

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24. Whenever anyone asks you if you’re OK and you clearly aren’t OK…

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25. And finally, when you read The Mighty and feel like people actually understand you…

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