The mission of Arthritis Introspective is to improve the lives of young- and middle-aged adults living with arthritis and rheumatic diseases through wellness education, empowerment, and support groups.more >
For more than 40 years, the Arthritis National Research Foundation (ANRF) has funded arthritis research to understand the causes, preventions and development of new treatments for osteoarthritis, rheumatoid arthritis, lupus, juvenile arthritis and other autoimmune diseases.
The Chronic Disease Coalition is a nonprofit organization dedicated to protecting the rights of chronic disease patients against discriminatory policies and practices. The Coalition was founded in 2015 and has since worked to advocate for people living with long-term or lifelong health conditions such as diabetes, kidney disease, MS, psoriasis, cancer and other conditions. We are patients, family members, health care providers, advocacy groups, medical professionals and others who care deeply about the needs of the millions of Americans with chronic diseases.more >
EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities, through print and digital media resources and materials, seminars, webinars, conferences, health coaching, and patient advocacy,
EDS Wellness provides education on various movement, nutrition, and mind-body therapies by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with chronic, complex, and multisystemic illnesses.
EDS Wellness collaborates with other organizations and healthcare practitioners on various projects associated with Ehlers-Danlos syndrome (EDS) and its related conditions, to provide information and resources for those living with EDS and the medical professionals who care for them. EDS Wellness focuses on helping patients live well while living with EDS and its comorbid health conditions.
EM Warriors is an international patient support & information network dedicated to empowering, educating and encouraging all those living with or affected by erythromelalgia and its comorbidities.more >
Klippel-Feil Syndrome Freedom empowers and unites patients and their families through peer support, education, research, and advocacy, for a lifetime of improved health care.