Jackie Pedersen is a 33-year-old high school teacher of 10 years, and a mother of four young children in beautiful northern Utah. She blogs about her family’s experience with rare disease in her son, hoping to offer some comfort or common threads to other parents out there who are searching for a connection, comfort, or just some real stories of common people with uncommon genes. She and her husband run a business together, work an acre and a half of land, and somehow find time to breathe and enjoy their little family, and maybe, occasionally, sleep. Find Jackie’s blog about rare disease in her 8-year-old son at