CONTRIBUTOR

Joe was born with a congenital heart defect called Tetralogy of Fallot. He required his first open heart surgery at 54 hours old and suffered a massive stroke after surgery. He has now had four open heart surgeries, the last two days before his 30th birthday. He has struggled with PTSD for most of his life and believes a strong mind and building a team with a roster full of supporters is the key to successfully living with a chronic illness. He is an advocate for families, children, and adults with congenital heart disease—helping them to navigate the emotions, diagnoses, and challenges they face in finding and understanding appropriate CHD care.

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