Tessa Prebble is a high school journalism and media teacher from Wellington, New Zealand. Her daughter, Eva, was born in April, 2014 and was diagnosid with CHARGE Syndrome. Eva was blind and deaf and had brain and heart abnormalities. She was tube fed and had low muscle tone. Eva died unexpectedly on February 2015.
Tessa has told her story and Eva’s through her blog The One in a Million Baby.
Tessa also produces a podcast which tells the stories of other special needs parents and their journeys in an effort to help new parents of babies like Eva feel less alone.