Chronic Illness

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Chronic Illness > Partners Associated with Chronic Illness

Our Chronic Illness Partners

  • A2A Alliance

    We are dedicated to inspiring, educating, and facilitating the process of turning personal challenges into service to others with similar challenges.

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  • Art Feeds

    Art Feeds exists to feed creative development and facilitate emotional expression in children through art and community. We strive to live by the lessons our students teach us, to: Love Naively. Give Generously. Be Foolishly Compassionate.

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  • Casey's Circle

    Casey’s Circle is a nonprofit dedicated to helping families of children with exceptional needs find ways for their kids to be kids first – patients later.

    Casey’s Circle provides tools, education, resources and opportunities to help improve the quality of life for medically complex children, their families and their providers, while also strengthening their circle of care.

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  • Chiari & Syringomyelia Foundation

    The mission of the Chiari & Syringomyelia Foundation is to advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders.

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  • Chronic Disease Coalition

    The Chronic Disease Coalition is a nonprofit organization dedicated to protecting the rights of chronic disease patients against discriminatory policies and practices. The Coalition was founded in 2015 and has since worked to advocate for people living with long-term or lifelong health conditions such as diabetes, kidney disease, MS, psoriasis, cancer and other conditions. We are patients, family members, health care providers, advocacy groups, medical professionals and others who care deeply about the needs of the millions of Americans with chronic diseases.

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  • Dysautonomia Advocacy Foundation

    Dysautonomia Advocacy Foundation was founded in 2014 to heighten public awareness about dysautonomias, offering communal support for those affected, and to elicit financial support and resources for educational opportunities, research of treatments for dysautonomias and, ultimately, a cure.

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  • EM Warriors: Erythromelalgia Patient Support & Information Network

    EM Warriors is an international patient support & information network dedicated to empowering, educating and encouraging all those living with or affected by erythromelalgia and its comorbidities.

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  • Endometriosis Foundation of America

    The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EFA places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

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  • EURORDIS Logo

    EURORDIS

    EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 716 rare disease patient organisations in 63 countries.
    We are the voice of 30 million people affected by rare diseases throughout Europe.

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  • For Grace

    For Grace is devoted to promoting better care and wellness for women with chronic pain.

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  • Front Row Foundation

    The mission of Front Row Foundation is to provide life-changing experiences to individuals and families who are facing critical health challenges. We strive to create front row experiences for our recipients at their favorite live event, such as a concert, sporting event or theater production, which allows them to set aside their set aside their medical and emotional challenges and celebrate the emotional energy and beauty of life. Our goal is to create lasting memories for the recipient and their family while inspiring them to live each day to the fullest, and in the Front Row!

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  • Girls With Guts

    Girls with Guts is a community full of empowered women and a support network created and designed so that no one will ever have to feel isolated by their disease.

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  • Good Days

  • Gracie's Gowns

    Our mission at Gracie’s Gowns is to provide children that are chronically ill with something fun and personal to wear while staying in the hospital or undergoing therapies and treatments in which they are not able to wear their own clothing.

     

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  • Gutless and Glamorous

    Gutless and Glamorous’s mission is to empower those living with or contemplating ostomy surgery due to illness or injury and to erase the negative stigmas and misconceptions of living with an ostomy. Our vision is a world free of unnecessary suffering from illness or injury due to stigmas associated with and around living with an ostomy.

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  • Hope for HIE

    Hope for HIE is the premiere global resource providing awareness, education and support for hypoxic ischemic encephalopathy.

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  • Hyperacusis Research

    A non-profit dedicated to stopping noise-induced pain and connecting researchers with patients.

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  • Lupus Foundation of America

    The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.

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  • MothertoBaby

    MotherToBaby is the nation’s leading authority and most trusted source of evidence-based information on the safety of medications, maternal medical conditions, and other exposures during pregnancy and while breastfeeding. Our FREE information service is available to mothers, healthcare professionals, and the general public. We also conduct state-of-the-art observational research on the safety of medications, maternal health conditions, and vaccines in pregnancy.

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  • My Patient Rights

    My Patient Rights is a website inspired by actual patients who have experienced denials, delays, high out-of-pocket costs, out-of-network charges and other barriers to quality, affordable health care from their health plans.

    These patients want to make it easier for you to understand how to resolve issues with your health plan, reach the applicable government agencies, file a complaint and get the health care you deserve.

    If your health plan has denied any health care services or prescriptions – or if you have experienced any other barriers with your health plan that leave you dissatisfied, My Patient Rights can help you resolve these problems.

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  • National Fibromyalgia Association

    We are the largest nonprofit organization dedicated to addressing and decreasing the burden of fibromyalgia through education, research and patient advocacy.

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  • Patient Services, Incorporated.

    We are a national non-profit that helps chronically ill patients with unaffordable medical expenses.

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  • Saving Lives One Flight At A Time

    Miracle Flights is a nonprofit organization and the nation’s leading health and welfare flight organization. We provide flight assistance through commercial airlines to children and families who need to reach distant, specialized medical care from experts and specialists throughout the United States. Through the support of our Miracle Makers, families are given hope that their loved ones may live longer, healthier lives.

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  • SignUp

    At SignUp, we believe that people should be rewarded for stepping forward and sharing their time and talents with those in need.

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  • Standing up to POTS

    STANDING UP to POTS is committed to supporting research for postural orthostatic tachycardia syndrome (POTS) and implementing POTS-specific solutions, resources, information, and programs while also increasing awareness about the disorder.

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  • The Caregiver Space

    Not everyone has friends who understand or will even listen; that’s why we’re here. We provide a safe and open space—at no cost to you— where you can be real about what it’s like to care for someone dealing with a serious disability or illness.

    You can use our community forums to ask questions, share experiences, get real answers, or just get things off your chest. Please do not use this space as a substitute for professional advice from your lawyer or doctor.

    No matter what stage you are in your caregiver journey—whether you currently care for someone, are about to, or did it in the past—you’re welcome here. This website is always accessible, so you can look forward to finding comfort and relief at any hour of the day or night.

    This is your safe space, The Caregiver Space.

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  • Vestibular Disorders Association (VEDA)

    VEDA is the leading international organization that people turn to for help with vestibular (inner ear and brain) disorders.

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