Disorder

COMMUNITY STORIES

Disorder

Disorder: Ehlers-Danlos Syndrome

These are general stories about any unspecified disorder.

A picture of a woman holding a mirror to her face, showing her eyes at a unique angle.

How I've Skewed People's Perception of My Pain

Escher Ford

How My Autistic Son Dealt With a School Shooting

Shanna Yost Eddy

6 Lessons From My First Months in the Down Syndrome Community

Mark Priceman

Ryan at school holding an ward with teacher by his side

To the Teachers Who Question Where My Son's Autism Begins and Ends

Kathy Hooven

Extreme close-up of a mother holding a hand of her daughter outdoors

Why Acceptance Doesn't Mean Giving Up the Fight for Your Child's Condition

Meagan C.

A woman laying on a couch with her hand to her head.

What We All Need to Realize About Post-Concussion Syndrome

Victoria Brown

A photo of the writer looking out towards nature.

How to Career Plan When You're Predicted to Die in 10 Years

Elly Aylwin-Foster

Defiant teen girl standing up to bullies.

How Comebacks Gave Me Confidence as a Bullied Kid With a Disability

Megan Marjorie

A watercolor image of a silhouette girl looking up at the stars.

The Unspoken Fears of Living With Vascular Ehlers-Danlos Syndrome

Jess Sawicz

A man holding a girl's hand, who is laying in bed.

Dear Caregivers, I Took You for Granted

Bailey Martens

fast drying microfiber gym towel, gel'o cooling pillow mat and o2 cooling necklace fan

18 Products People Who Sweat a Lot Recommend

Paige Wyant

woman leaning against a window in the street at night

Dear World: I Don't Look Like Your Definition of 'Sick,' and I'm Not Sorry

Darcey Robinson The Zebra Unicorn

black and white image of a woman with the wind blowing in her hair

How My Rare Diagnosis Helped Me Realize What 'True Strength' Is

Jennifer Yashari, M.D.

maci bookout

'Teen Mom' Star Nails the 'Lose-Lose' Side of Chronic Illness Doctors Don't Always Get

Erin Migdol

Sister holding brother with Down syndrome and taking a selfie

A Sibling's Guide to Down Syndrome

Rebecca Fisher

Zipper shoes and AFOs.

5 Tips for Finding Stylish Shoes If You Wear Orthotics

Lainie Ishbia

Images of first and second tattoo.

I Have Three Tattoos for Down Syndrome Awareness

Rebecca Fisher

A woman crying as she pulls off a mask.

When You're 'the Sick One Now'

Christa Cordova

Why I'm Advocating on Capitol Hill for Rare Disease Day

Heather Shorten

A woman in her kitchen, staring off into space.

When Your Symptoms Aren't Your Chronic Illness

Lora Horn

Two high schoolers studying in the library.

To My Chronically Ill High School Self Trying to Pick a Career

Laura Zdanski

A woman resting her head on her desk.

10 of the Worst Lyme Disease Symptoms

Lavi Picu

A study group at a table.

How I Confronted Lyme Disease in College

Emily Levy

Parent holding child near the water, sunset

The Most Important Thing You Can Do After Your Child's Diagnosis

Natalie Marie Brobin (formerly Bonfig)

Jessica's son on yoga mats on the table for tummy time.

Playing With My Son During 'Tummy Time' as a Mom in a Wheelchair

Jessica Roberts

Place setting.

How Autism Affects My Eating Habits

Kit Smethurst

Jean getting ready to break wood in Rock Steady boxing class.

Overcoming My Fear of Failure as I Live With Parkinson's Disease

Jean Mellano

doctor talking with a patient in his office

When a Doctor Gave Up on Treating My Migraine and Told Me to 'Live With It'

Jorie Logan Morris

woman walking along a beach with a trail of footprints in the sand behind her

Why We Should Focus on Small Steps When Living With Chronic Pain

Jeannie Di Bon

watercolor painting of a woman with colorful hair and eyes closed

How I Felt After Receiving Another Chronic Diagnosis

Nae Waters

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