Dravet Syndrome

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Dravet syndrome is a rare genetic epileptic disorder that is caused by a dysfunction of the brain, known as encephalopathy. Seizures typically begin in the first year of life and last a lifetime, and cause some level of developmental disability. Dravet syndrome is caused by a gene mutation, which is often not inherited, that causes a dysfunction in the brain’s ion channels in about 80% of individuals. The seizures are refractory and do not respond well to medications in most cases.
Our partner Dravet Syndrome Foundation provides support and resources to individuals experiencing Dravet syndrome in their lives.

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