Ehlers-Danlos Syndrome

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Ehlers-Danlos Syndrome > Partners Associated with Ehlers-Danlos Syndrome

Our Ehlers-Danlos Syndrome Partners

  • EDS Today ~ Advocates

    We provide Ehlers-Danlos Syndrome (EDS) information, awareness, education, guidance and support for all those affected. We strive to bring recognition, identification and a correct diagnosis for ALL those affected. We help to guide them towards knowledgeable (skilled) medical professionals, appropriate treatments, preventive management, interventions and monitoring. more >
  • EDS Wellness

    EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), connective tissue diseases, and related comorbidities, through print and digital media resources and materials, seminars, webinars, conferences, health coaching, and patient advocacy, EDS Wellness provides education on various movement, nutrition, and mind-body therapies by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with chronic, complex, and multisystemic illnesses. EDS Wellness collaborates with other organizations and healthcare practitioners on various projects associated with Ehlers-Danlos syndrome (EDS) and its related conditions, to provide information and resources for those living with EDS and the medical professionals who care for them. EDS Wellness focuses on helping patients live well while living with EDS and its comorbid health conditions.       more >
  • Ehlers-Danlos Society

    Our strength begins with hope. We are striving toward a time when all those with Ehlers-Danlos syndromes and hypermobility spectrum disorders achieve their right for an early diagnosis, good management, respect and recognition for their condition — time when geography does not determine your quality of life and when you tell some one you have Ehlers-Danlos syndrome, you are not asked what that is. more >
  • Hypermobility Syndromes Association

  • Spinal CSF Leak Foundation

    Our mission is to reduce the suffering of those affected by spinal CSF leaks. more >
  • Worldwide Syringomyelia & Chiari Task Force Inc.

    Our mission is to educate the world about the diseases Syringomyelia and Chiari Malformation. more >