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Migraine is so much more than a headache, right? Whether you live with acute or chronic migraine of any variety, experience a migraine episode as part of another health condition or have a loved one with the diagnosis, this group has your back. Let’s use this space to trade tips and compare notes with other migraineurs and the people who care for them! Migraine is tough but so are you.
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Community Voices

Does anyone experience this?

I have regular migraines, but I have started noticing a new sensation during the last 3 or 4 episodes.
When I put any food or drink in my mouth, particularly during the beginning of a migraine (which I do to try to stop the nausea) my whole mouth and jaw hurts and kinda goes into spasm, almost as if it’s trying to lock.
It’s horrible and it’s painful. Is this an expected symptom of migraine? Dot you have any tips of how to prevent/relieve it? #Migraine

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Community Voices

How do you relieve stress while also managing your migraine symptoms?

<p>How do you relieve stress while also managing your <a href="https://themighty.com/topic/migraine/?label=migraine" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9c00553f33fe997c0a" data-name="migraine" title="migraine" target="_blank">migraine</a> symptoms?</p>
1 person is talking about this
Community Voices

I saw 10 kinds of migraine listed here, I have 9.

I read here that there are 10 kinds of migraine. So far , I have 9. I have had migraines since I was 12,over 50 years. They started with menstrual triggers, Since then I've had a histerectomy and been through menopause. That's when things got strange. It started with uncontrolled movements in half my body, then fainting and finally 6 to 12 hours of vomiting. I just started with a new neurologist, he ran every scan and test and hasn't found answers yet. I get Botox and try to take meds, but often can't keep them down. I have no social life. My dogs and horse are my companions, but I have been married for 45 years. I consider myself blessed just for that.I was a fanatic athlete, mountain climbing, running, riding and gardening. I was actually paid well for gardening. Now , if I actually sleep all night I am stoked. I found this site a long time ago, but it is hard for me to talk about all this. I was so strong, born of Vikings, educated in a medical family and actually paid to sing. All of our parents finally died. I lost some incredible dogs and a horse, went through depression and rarely do anything fun anymore. Well , all that to say, I still feel blessed.I live in Hawaii near the beach. It truly is beautiful. I have experienced a strength and connection with God, the universe and 2 awesome grown children and their kids. My husband still stands by me. I have found so many people here and in snatches of encounters that do not have much hope. Hope is knowing that there is so much more than my pain. heck we have seen the furtherest star in the universe!. Life is facinanating. They named the star Earendel, after a Tolkien character.it is from the old Norse. I look into the heavens and I see my home. I am very small in this vast heaven, I find all of these troubles a passing comet, until I learn to fly. ( oh and I fully expect to see all my lost pets in heaven).

Community Voices

Thank you for joining us this week as we shared some of our best migraine content for National Migraine & Headache Awareness Month!

<p>Thank you for joining us this week as we shared some of our best <a href="https://themighty.com/topic/migraine/?label=migraine" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9c00553f33fe997c0a" data-name="migraine" title="migraine" target="_blank">migraine</a> content for National <a href="https://themighty.com/topic/migraine/?label=Migraine" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9c00553f33fe997c0a" data-name="Migraine" title="Migraine" target="_blank">Migraine</a> & <a href="https://themighty.com/topic/headache/?label=Headache" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8600553f33fe993e2e" data-name="Headache" title="Headache" target="_blank">Headache</a> Awareness Month!</p>
Community Voices

Dealing with a migraine

Hello, I'm new here. I'm dealing with a horrible horrible migraine today. I have my regular daily dose, and I also have an emergency migraine med that helps of it is actually excruciating. I took ot and took a nap. Still have a migraine :(.

8 people are talking about this
Community Voices

Have you heard about this migraine writer on The Mighty?

<p>Have you heard about this <a href="https://themighty.com/topic/migraine/?label=migraine" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9c00553f33fe997c0a" data-name="migraine" title="migraine" target="_blank">migraine</a> writer on The Mighty?</p>
1 person is talking about this
Community Voices

Migraine hangover

I hate the post migraine hangover when I'm in such a fog I can't function.
I had plans with a friend to have a picnic with our toddlers today and I don't know if I can manage.

Then my anxiety takes over and I feel like a crap mom. My baby deserves a mom who can function to do all the fun things. 🥺 #Migraine #MigraineBrainFog #Anxiety

7 people are talking about this
Community Voices

I'm Alice in Wonderland , until the Queen takes off my head!

So, you probably think at least life can never get boring when you look out of your window and see Barbie Pink Cows in Bright Blue fields. Or a visit from a summer wasp makes you feel like an actor in a 50's B movie. Can't be that bad right ?

Well think again.

Although , there is no way to test it , even my neurologist was unwilling to put the diagnosis in my notes in case his colleagues wouldn't believe him , I seem to be suffering from a rare type of Migraine condition called Alice in Wonderland Syndrome.

Along with the other wild and not so wonderful migraine varieties in my head's bag of nasty tricks , this syndrome causes me to see strange hallucinations , or makes the people and objects around me change shape and size before it finally finishes the psychedelic field trip with an intense migraine head ache.

Before , I discovered , ' being Alice', could actually be a thing , I mostly kept what I was seeing to myself.

I hadn't linked the fact that these visions were followed by head pain , and that it could be the onset of the Migraine that caused them. In fact , I was convinced that I was mad in a way that nobody would understand , and thought the headache only happened because of the way my mind was being overwhelmed by the experience.

I only discovered the rare set of symptoms in the Migraine family when I had been diagnosed with Chronic Migraine Syndrome and my Neurologist suggested that I look up the different types of Migraine that I was having , so that I could understand what I was going through and why.

( I suffer from many Migraines in the Spectrum including Thunderclap , Migraine with Aura , activity onset , orgasm onset, and Stroke like Migraine).

When , I returned for my follow up appointment , I mentioned the syndrome , he hadn't really heard of it , but looking back on the notes from the previous appointment he noted that I had already finally been brave enough to mention this to him before learning that the condition existed.

Believe me , when it happens it is still scary , but it is also relief to know that I'm not losing my mind , or that I haven't accidentally fallen down a fictitious Rabbit Hole.

No , merely just receiving another unwanted gift from the uninvited friend that keeps on giving - Professor Migraine.

And , on a positive note, it means I know the Pain is about to strike and I can prepare for it.

At least I am in good company , as , in case your interested , it appears that Lewis Carroll was a famous migraine sufferer whom was plagued by the same thing , hence the name.

Now , where is that giant green Bunny Rabbit I saw earlier!

Community Voices

Migraine that won’t go away

Hi. I am new here and have several chronic health issues but right now I have a migraine that will not go away. I just lie in my bed with an ice pack on my head and one on my neck waiting…waiting for it stop… waiting for nighttime so maybe I can sleep. It will get better at times and I can get up and do a few things, but it returns. I can only take a small amount of my migraine medicine, a triptan because about a month ago it triggered serotonin syndrome in me. I am on several medicines that affect serotonin so I have to be very careful if I add something like my triptan or even Zofran for the nausea. It grindingly hard to have this and be sidelined from life. #ChronicMigraineSyndrome #ChronicPain #EhlersDanlosSyndrome

11 people are talking about this
Community Voices

Have you read these top stories about migraine?

<p>Have you read these top stories about <a href="https://themighty.com/topic/migraine/?label=migraine" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9c00553f33fe997c0a" data-name="migraine" title="migraine" target="_blank">migraine</a>?</p>