I hate the post migraine hangover when I'm in such a fog I can't function.
I had plans with a friend to have a picnic with our toddlers today and I don't know if I can manage.

Then my anxiety takes over and I feel like a crap mom. My baby deserves a mom who can function to do all the fun things. 🥺 #Migraine #MigraineBrainFog #Anxiety

So, you probably think at least life can never get boring when you look out of your window and see Barbie Pink Cows in Bright Blue fields. Or a visit from a summer wasp makes you feel like an actor in a 50's B movie. Can't be that bad right ?

Well think again.

Although , there is no way to test it , even my neurologist was unwilling to put the diagnosis in my notes in case his colleagues wouldn't believe him , I seem to be suffering from a rare type of Migraine condition called Alice in Wonderland Syndrome.

Along with the other wild and not so wonderful migraine varieties in my head's bag of nasty tricks , this syndrome causes me to see strange hallucinations , or makes the people and objects around me change shape and size before it finally finishes the psychedelic field trip with an intense migraine head ache.

Before , I discovered , ' being Alice', could actually be a thing , I mostly kept what I was seeing to myself.

I hadn't linked the fact that these visions were followed by head pain , and that it could be the onset of the Migraine that caused them. In fact , I was convinced that I was mad in a way that nobody would understand , and thought the headache only happened because of the way my mind was being overwhelmed by the experience.

I only discovered the rare set of symptoms in the Migraine family when I had been diagnosed with Chronic Migraine Syndrome and my Neurologist suggested that I look up the different types of Migraine that I was having , so that I could understand what I was going through and why.

( I suffer from many Migraines in the Spectrum including Thunderclap , Migraine with Aura , activity onset , orgasm onset, and Stroke like Migraine).

When , I returned for my follow up appointment , I mentioned the syndrome , he hadn't really heard of it , but looking back on the notes from the previous appointment he noted that I had already finally been brave enough to mention this to him before learning that the condition existed.

Believe me , when it happens it is still scary , but it is also relief to know that I'm not losing my mind , or that I haven't accidentally fallen down a fictitious Rabbit Hole.

No , merely just receiving another unwanted gift from the uninvited friend that keeps on giving - Professor Migraine.

And , on a positive note, it means I know the Pain is about to strike and I can prepare for it.

At least I am in good company , as , in case your interested , it appears that Lewis Carroll was a famous migraine sufferer whom was plagued by the same thing , hence the name.

Now , where is that giant green Bunny Rabbit I saw earlier!

Hi. I am new here and have several chronic health issues but right now I have a migraine that will not go away. I just lie in my bed with an ice pack on my head and one on my neck waiting…waiting for it stop… waiting for nighttime so maybe I can sleep. It will get better at times and I can get up and do a few things, but it returns. I can only take a small amount of my migraine medicine, a triptan because about a month ago it triggered serotonin syndrome in me. I am on several medicines that affect serotonin so I have to be very careful if I add something like my triptan or even Zofran for the nausea. It grindingly hard to have this and be sidelined from life. #ChronicMigraineSyndrome #ChronicPain #EhlersDanlosSyndrome

Hello, I'm new here. I'm dealing with a horrible horrible migraine today. I have my regular daily dose, and I also have an emergency migraine med that helps of it is actually excruciating. I took ot and took a nap. Still have a migraine :(.