Our global non-profit patientorganization was formally established on January 22, 1997, to promote the welfare of people who suffer from vascular malformations such CMTC (Van Lohuizen syndrome), particularly its own members, and to promote and develop activities that foster well being.
Our society is evolving constantly. The society in which the companies stood for profit and government for the common good is evolving into one in which many problems transcend national borders and more than 50% of the top 100 economies are not countries but corporations. As a consequence, global enterprises have to embrace not only an economic but also a social responsibility. Companies have to assume a stewardship requiring a commitment of the entire company from top to bottom – a corporate social responsibility (CSR). CSR is a way of doing business that is aimed at economic performance (profit ) with respect for the social side (people) within ecological constraints (planet): the “triple P” approach. CSR is not hype – is is the new way of doing business. A modern company exists in the midst of society and is formed by the people working there. The Organisation for Economic Cooperation and Development (OECD) has drafted recommendations for corporate social responsibility, the so-called OECD guidelines. These guidelines make clear what governments expect from the behavior of companies.
Many companies have ‘corporate social responsibility’ programs and thus contribute to a better society.
Real People. Real Stories.
We face disability, disease and mental illness together.