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Popular Stories About Rare Disease
Most-read stories about Rare Disease
Why the World Is Weighing in on Charlie Gard's Care
We Are the Sisterhood of Mothers With Medically Fragile Children
To Those Who Stand With Me as I Fight Against My Rare Disease
6 Essentials for Being a Successful 'Mommy-Advocate'
Why I Won't Say 'As Long as My Baby Is Healthy'
When I Told an ER Doctor 'I'm Here Because I Need Your Help'
To the Experienced Hospital Staff Member Who Couldn't Accept That I'm Rare
When the Stress of Having a Rare Illness Took a Toll on My Mental Health
Why It's Not Easy Living in a Small Town With My Rare Disorder
My Message as a Researcher to Anyone With a Rare or Undiagnosed Disease
The Power of a 'Rare Disease Card' When I'm Asked About My Daughter's Health
What It's Like to Hear a Geneticist Say, 'It's Never Been Seen Before'
What It's Like Having a Child With a Rare Disease
24 Things People With Rare Diseases Wish Others Understood
5 Lessons I've Learned About Accepting Limitations With Illness
Truths People With Rare Diseases Wish Others Understood
To the Nurse Who Said the Most Perfect Words About My Rare Disease
What the Other Rare Disease Moms in the Waiting Room Helped Me Realize
Why We Need to Close the Gap in Emergency Medicine for Rare Disease
9 Things People With a Rare Disease Are Tired of Hearing
18 Things People Need to Learn on World Rare Disease Day
To Those Who Question Why We Chose Genetic Testing for Our Child
The Mom I Would Have Been
Caregiver Self-Care, Not Just One More Thing on the List
Why I Was Afraid to Meet My Daughter
The Hardest Parts of Having a Rare Disease
My Illnesses May Be Invisible, but the Intolerance I Face Isn’t
How I Find Eternal Light in the Darkness of Rare Disease
To the ER Doctor Who Told Me I Was 'Wasting Time and Resources,' Thank You!
Why I’m Tired of Having to Explain My Child’s Differences to Strangers
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