Mighty Member since August 2018
Hello! My name is Sophie, I’m 22 year old from South Wales and my chronic illness story began at the age of 14. I have a variety of chronic illnesses which include Ehlers-Danlos syndrome (EDS), Postural Orthostatic Tachycardia Syndrome, or as it’s commonly known as (POTS) and depression. My most debilitating condition is EDS, which causes a range of symptoms such as dislocations of any joints with minimal trauma, fatigue, chronic pain, and gastrointestinal problems. These are just a few symptoms I deal with on a daily basis and no words can truly describe what it is like to live with Ehlers-Danlos Syndrome. It can be very frustrating how people think this is a condition whereby you are just “bendy” and I hope to raise more awareness through blogging and other platforms.