Mighty Member since January 2020
I lost my sense of smell in 2012 after a virus and had a condition called anosmia (total smell loss). I now suffer from parosmia (the distortion of smells). I am the founder of a charity in the UK called AbScent. We offer support, education and practical advice to people in the UK and internationally on all aspects of living with smell loss. I started two internationally recognised research projects, involving the thousands of members of the AbScent group. Anosmia is an invisible disability and is not well known either by the public or the medical community. AbScent seeks to raise awareness both for sufferers but also within the medical and research communities.