Mighty Member since August 2022
As a rare disease warrior, I am tired of hearing doctors talk to doctors about our community, but not including us in the conversation. I am tired of doctors talking at us, and not with us. We need to elevate patient voices and be included. I run an advocacy and awareness group called Team Vasculitis to elevate patient voices, I host a podcast where I dig into all aspects of living with a chronic illness, and I teach a group coaching course called Hack Your Health to teach others how to take control of their care and take back their lives. No one teaches us how to live with a chronic illness, and the learning curve can be difficult and painful. I help make sure you thrive.