Mighty Member since August 2018
I became totally disabled in 1992 at the age of 33 when I was diagnosed with Nonclassical Congenital Adrenal Hyperplasia. In 2000 I was diagnosed with mitochondrial myopathy/MELAS. Both conditions cause profound debilitating fatigue and muscle weakness. The mitochondrial disease causes energy depletion on a cellular level leading to organ and body system failures. My breathing muscles and heart are affected by it. My adrenal disease causes profound fatigue, adrenal insufficiency, and occasional, adrenal crises, which is life threatening. Keeping the right steroid balance is very difficult.