Mighty Member since April 2018
A friend shared one of your articles a couple years ago. I have followed ever since. I especially relate to the articles about the stresses of being a parent of a child with a disability or medical complexity. Four years ago my son was diagnosed with Duchenne/Becker Muscular Dystrophy. This was a earth shattering diagnosis but overtime we have learned to manage and thrive. I have found connecting to other families in similar situations to be one of the most helpful things I can do for myself and my family. I even helped start a local support group for families with dmd/bmd, as well as a facebook parent group. I am also on the family advisory board at Lurie Children's Hospital of Chicago, and am grateful to be able to help influence and make positive changes in our hospital. I have blogged on and off over the past few years and am excited to have my first Mighty article published. Thank you for this opportunity!