Mighty Member since April 2015
Hillary Savoie is a writer, advocate, mixer of killer cocktails, and friend to punching bags everywhere. She is also mother to Esmé, a beautiful little girl with multiple rare genetic conditions. Hillary has blogged about life with Esmé, since September 2012 on her blog: The Cute Syndrome. She also blogs at Mom, Imperfectly. Hillary is the Founder and Director of The Cute Syndrome Foundation, which is dedicated to raising research funds for and awareness of PCDH19 Epilepsy and SCN8A Epilepsy. In 2015 she published two short memoirs, Around and Into The Unknown and Whoosh. And she holds a doctorate in Communication and Rhetoric from Rensselaer Polytechnic Institute, which was great preparation for parenting Esmé, who is an expert in nonverbal persuasion.