Mighty Member since March 2017
I have a Masters Degree in Social Work and almost 20 years working in the social service field. I left my job in 2015 when my husband took a new job that required him to do a lot of traveling. I now do some consulting work related to domestic violence and enjoy being able to travel with my husband and our children. I was diagnosed with Pompe Disease in July 2015, and now receive biweekly treatments that slow the progression of my illness. It has become very important to me to be able to share my story and to advocate on behalf of the rare disease community.