Mighty Member since June 2016
Joe was born with a congenital heart defect called Tetralogy of Fallot. He required his first open-heart surgery at 54 hours old and suffered a stroke after surgery. He has now had four open-heart surgeries, the last two days before his 30th birthday. He has struggled with anxiety & PTSD for most of his life and believes a strong mind and building a team with a roster full of supporters is the key to successfully living with a chronic illness. He is a Board Certified Patient Advocate for families, children, and adults with congenital heart disease—helping them to navigate the emotions, diagnoses, and challenges they face in finding and understanding appropriate CHD care.