Mighty Member since March 2018
Living with chronic, incurable, and rare medical conditions can be discouraging and lonely. When we share our stories and listen to the stories of others, we gain valuable insights that can bring encouragement on the darkest days, ideas for new treatment options, and primarily, feel a little less alone in our struggles. My life isn't following my Plan A, my Plan B, my Plan C, or probably even my Plan X. But it's my life and I'm trying to live it the best I can while struggling with Chronic Intractable Migraine, Familial Hemiplegic Migraine, the effects of two posterior fossa decompression surgeries for my Chiari Malformation, Postural Orthostatic Tachycardia Syndrome, PTSD, EDS, Chronic Fatigue, widespread pain, and some other yet unknown issue that has left a "pocket" in the artery that runs by my pituitary gland. It's lonely, discouraging, difficult, and the only way I get through it is with a good sense of humor, living thankfully, the ability to connect with other people, and the fur-babies who keep me getting out of bed one day at a time. And so, here I am on The Mighty, hoping to connect, learn, encourage, be encouraged, and get through each day as it comes.