Mighty Member since September 2017
Mary Kitlowski is a speaker and advocate for those with lung diseases and rare diseases. She founded Running On Air to raise awareness and raise funds for lung and rare diseases. Running On Air does this by sharing patient stories, posting facts and research, as well as hosting virtual races that raise funds for organizations like the PCD Foundation and the National Organization for Rare Disorders (NORD). Mary is a runner at heart with a rare and progressive lung disease called Primary Ciliary Dyskinesia. With a lung capacity currently at 34%, and requiring supplemental oxygen, these days she walks. She is currently a lung transplant candidate - she has been approved to receive a lung transplant, however she is not listed at this time. She completed her first marathon, the New York Marathon, on November 3, 2019 in 9 hours and 50 minutes. Her husband joined her, carrying her extra portable oxygen concentrator batteries.