Mighty Member since February 2018
Meagan is a wife and mother to Eva and Molly; her youngest daughter Molly has Angelman syndrome. After Molly's diagnosis, Meagan dedicated her time to generating awareness into Angelman syndrome and rare diseases and she was instrumental in starting the Foundation for Angelman Syndrome Therapeutics Australia and a local charity called “Rare Friends.” Meagan's work experience is in Geographic Information Science which led her to pursue the project that is now known as the Global Angelman Syndrome Registry -- the largest study on Angelman syndrome to date.