Mighty Member since December 2016
My name is Sara. I am 25 years old and have the very rare disorder called Ehlers-Danlos Syndrome. My specific type is more rare than others, with only about eight or so cases discovered worldwide. The discrepancies of my disorder cause my skin to lag immensely, as well as other common problems such as dislocating joints, fragile skin and numerous inner system problems. I wasn’t always accepting of my disorder and the imperfections that came with it, but within the past year or so I accepted my disorder and learned to love myself and my body. I had my first story featured on the loveyourlines IG which is where my true calling took off. I chose to pursue modeling and photography with my disorder in an effort to raise awareness for Ehlers-Danlos. By showing my own flaws and discrepencies I hope to lessen the struggle of others on the road to self-love and break down society’s unrealistic barriers of perfection, which are present within our everyday lives.