Mighty Member since February 2019
I am attracted to anything to do with health and wellness. And I regularly read the fantastic content on The Mighty. Due to trauma from the medical journey and several misdiagnosises I am committed to finding my own ways to get as well as I can and get back aspects of my health I thought were lost forever. I got "lost" for many years in the medical system and I never thought I would be well enough to study or work ever again, but I have made huge progress since my formal EDS diagnosis back in February 2020 and I am currently studying part time for a Neuropsychology MSc which I hope to eventually put to use in some research into the clinical benefits of floatation therapy. I now have a personal interest in the diagnostic journey; medically-induced PTSD from the diagnostic journey; communication skills used in healthcare settings; differences in opinions and perspectives of the presenting complaint; the difference a diagnosis makes to someone’s life; stages of chronic illness identity and finally the adaptations a patient makes in learning to self-manage following a correct medical diagnosis. I continue to do what I can in the fields of both patient advocacy and educating medical professionals about complex and rare illnesses.