Mighty Member since August 2017
I am on a journey to support the needs of my middle daughter who is 9yrs old and has a rare genetic condition called GOLDBLATT SYNDROME, a type of Dwarfism. Only 18 cases exist worldwide. I am spreading awareness and work with the community to support inclusion. This is a life-limiting condition with no textbook definition or future plan known. I hope my blogs can help other parents facing difficult times with their child's rare condition. #agirlinabillion