Mighty Member since February 2019
My son was diagnosed with a rare disease (Hurler's Syndrome) about 4 years ago. It has been a journey dealing with his condition and all the complications. In addition to that we have 2 other children and trying to balance their needs with their brother's needs has been a fun (?!) road to travel. As any mother of 3 young boys trying to take care of my own mental health and self care is a challenge. When you throw in all the medications and doctors' appointments and such that come hand-in-hand with a rare disease, some days it is hard to find myself amongst the chaos. Regardless, I love my boys and and am on this road for the long haul. We try to find a reason every day to laugh and we make sure they know they are loved every day. Some days that is how we make it through the day.