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#Has anyone else had a flare up of fibromyalgia following Pfizer covid vaccine?
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#Has anyone heard of Myeolmalacia I have it Look it up .Pain is terrible Spinal cord has hemmoraged.
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#Has anyone been diagnosed with #Narcolepsy since diagnosed with #Chiari and or #OccipitalNeuralgia ??
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#Has anyone ever gone to The Spero Clinic? What was your experience like?
I started having seizures about 6 months ago. As if my life wasn’t complicated enough. I was told that Your brain can’t handle the extreme pain so it basically shuts down (seizures) your brain & body so it can reboot. Has anyone else ever experienced this?
#ComplexRegionalPainSyndrome
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#Has any had problems with the pharmacy refusing to fill your prescriptions?
#I have CRPS/RSD and have been going thru the same pain management doctors from the beginning (8 1/2 yrs) I have had a problem with 2 pharmacies in 5 mths on a flat out refusal to fill. The first time it took a week to find a pharmacy, thank God I I had some backups that time. This time no warning and no backups. I wound up going on vacation without meds, which was not good. Stress can cause a spread with this disorder and between the two rounds of crap with the pharmacy.
Does anyone know if we can sue the pharmacies or the pharmacists?
Thanks Angie H.#
#RareDisease
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