Kidney Disease

Hi, my name is Tillettstacey52. I'm here because I have a rare kidney disease and it's wiping me out. Dialysis 3 days a week, taking care of grandchildren and I have a non supporting spouse. Somethings gotta give......

#MightyTogether

So I was on a pretty heafty dose of prednisone last year during the summer die to my Lupus. I had very limited mobility and it was overall a pretty terrible experience.
Anyway- I ended up gaining a lot of weight very quickly, and it’s become very difficult to loose.

I used to be 190LBS, I’m 5’6, with broad shoulders. So I looked pretty healthy, and I was very confident and proud of myself!

But because of my Lupus and medications like prednisone, I’m now 235LBS and I just feel awful. It seems like the prednisone has made it so much harder to loose weight., even thought I have stoped taking it months ago!
I’ve been dealing with depression and anxiety, as well as overall crippling fatigue- people, including doctors- keep telling me “just get moving! Go on walks! Eat healthy! Don’t eat processed foods!” But they seem to forget I struggle with chronic pain, horrible fatigue, exercise and heat intolerance and an overall lack of good days.

So how on earth am I supposed to loose weight? So I can feel better about myself again? I’m loosing hope with it, and I just feel so lost and lonely and exhausted. I’m not flailing anymore,so why do I feel so bad?

Chronic illness is becoming too much for me.
#Lupus #LupusNephritis #SystemicLupus #SystemicLupusErythematosus #ChronicFatigue #ChronicPain #KidneyDisease #AntiphospholipidSyndrome #Vasculitis #Depression #Anxiety #Prednisone #CheckInWithMe #PTSD

Hi, my name is Blazewoman84.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #OCD #Grief #ChronicFatigueSyndrome #AutismSpectrumDisorder #ADHD #chronic Fatigue Syndrome #chronic Liver Disease with Cirrhosis #chronic Kidney Disease Stage 3 #degenerative Disc Disease # Numerous herniated and pinched nerves #and numerous other diseases and disorders.

I foster cats and kittens for my local shelter, and majority of them have some sort of medical issues themselves. Might as well put my knowledge to use. I originally registered to be a hospice foster, but they are not too common so last year I did medical kittens. Well today I took my foster who has severe hyperthyroidism and just started treatment for her shots and dewormer. I'm going home on the bus and she gets sooo sooo sick that she was vomiting blood. Back to the humane society I go. Now it's a mile walk round trip and anywhere from a hour to hour and a half bus ride with transfers. I love these babies and will do anything for them. Even if I have to steal spoons from tomorrow. But right now I'm exhausted, frustrated because they only just told me today she has kidney disease, and ready to scream, because I feel overwhelmed and that's not normal for me with these babies. Tomorrow I will be fine, most likely I'll be fine after a meal and a rest, but right now, I feel like I can't do this.

Hey, everyone 👋☺️. Hope you are all doing well ☺️🙏.

Need some advice from anyone on here who has a parent or relative that has Chronic Kidney Disease.

My mother was recently diagnosed with it and I would really appreciate some advice on how to help her. She is in good spirits plus she is still able to lead a normal life, thank the Good Lord 🙏☺️.

Like I previously mentioned, I am looking for ways I can be of help.

Thank you in advance for any advice given.

#KidneyDisease #MentalHealth