Optic Neuritis

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I did a thing! Terrified!

I did something today so major, so big that I'm still spinning from it.
I quit my job today, yes I quit my job!
I was diagnosed with RRMS last May, I've been In crappy shape even before the diagnosis. But even after the diagnosis and feeling the worst I've ever felt health wise, I kept on working, with just 1 week off from my first hospital stay from my diagnosis, with optic neuritis, partial blindness, severe pain and dead smack in the middle of my first major flare up, my ass went back to work after 1 week. I went back to my 10 hour a day, no breaks, crazy stressful pharmacy job. I lasted 5 more months before I just couldn't do it anymore.
So I went straight from there to a bank teller job, which where it wasn't physically straining, it was every bit of stressful and mentally exhausting.
I've lasted there 6 months, until I just cried my eyes out this evening to my husband. I told him I'm tired of giving my energy and what little I have in me daily to places that could care less about me or my health, instead of giving it to my kids and him. The ones who deserve to have me at my best for as long as they can. He has been pushing me to start trying to get my SSDI. So he looked at me and said I love you, and I want you to be ok for as long as your body allows. I want you to put you first for once and not worry about money or worry about giving up on working. He told me to give all my worries to him to figure out, that I've fought long and hard enough and to for once think of myself.
So I did just that. I texted my boss and told her I was no longer coming back, dropped my keys in the night deposit box, and felt a load of weight off my shoulders dissappear. Am I scared? Yes! Am I uncertain? Yes! Do I know what I'm getting myself in to? No! But I believe God has me in his hands and will see us through, because he knows too that I need to rest and my kiddos need a mom who can be all in , instead of sick all the time. And my husband needs his wife back. I can't keep pouring from a empty cup. Please pray for me to step off of this unknown and to do it as bravely as I can. Also, anyone who has applied or have gotten their SSDI off of their work points, how difficult was it? How long did it take? I'm going to be getting a lawyer to help me. I live in Kentucky.
#MultipleSclerosis

5 reactions 3 comments
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I’m new here!

Hi, my name is Kshirja Singh (shree). I'm looking for the humor while iam dealing NMOSD and Optic Neuritis. Iam partially blind but I see twice the funny side of my illness. Specially people's reactions.. priceless..

#MightyTogether

(edited)
4 reactions 1 comment
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Twas a Night With My MS

‘Twas a night with my M.S. as I limped through the house.

I lose my balance a lot so I walked near the couch.

The droop of my chest and my belly below,

Said I was further from young and closer to old.

The stockings were pinned to the mantel with care,

But one stocking was missing. I don’t know where.

“Don’t forget the cookies!” came a voice in my head.

They need to be covered before going to bed.

As I walked through the kitchen I heard several snaps,

The usual sound from my angry knee caps.

Then I tripped on my foot and dropped the cookie platter.

It bounced on the floor with loud metallic clatter.

Well I guess I was going just a little too fast.

In the morning I’ll just have to make a new batch.

I sat on my walker to assess my stubbed toe,

And looked at the cookies and crumbles below.

When what to my wondering eyes should appear,

But the missing stocking behind a decorative reindeer.

I wish I were a little more steady and quick.

Then my arm muscle spasmed and the stocking got flicked!

But where did it go? Ah now I see.

I had aimed at the mantel but it landed at my feet.

I laughed when I saw it in spite of myself,

Then laid it next to my Elf on the Shelf.

I thought of the dinner I had already planned.

Sweet taters, salad, and a nice honey ham.

The family would be here tomorrow at three.

I clenched my kegals because I needed to pee!

I picked up speed as I dashed down the hall,

Saying ‘Don’t you dare pee! Don’t you dare fall!’

I made it in time- a miracle at that!

I looked in the mirror and gave my shoulder a Pat.

My health is very important to me so I checked my medicinal inventory:

If I ran out of meds it would be quite a shame,

So I reviewed what I had and I muttered their names.

I had Avonex, Baclofen, and vitamin D,

I had several anti inflammatories.

Aspirin, Dalfampridine, Aleve, and Naproxin,

Restless leg cream and Levothyroxine.

I had melatonin, magnesium too,

Even a laxative to help me go poo.

Then I brushed my teeth with one hand on the wall,

And continued my journey to the end of the hall.

I put on my pj’s and climbed into bed,

Then adjusted the pillow under my head,

And the one at my back and between my knees.

I had tried to relax, but again need to pee.

I forgot the twinkling lights on my roof!

I need to save money, so got up with an “Oof”

I flipped off the lights and looked up at the sky.

I have optic neuritis in my left eye.

Then I heard the scratching of one little paw.

My dog was after a cookie crumb she saw.

All that I needed was a sick little dog.

I picked up the crumb then had a nip of egg nog.

With so many goodies I was looking quite thick,

But not too bad for a disabled chick.

Everyone gets some joy and some strife.

I still felt quite lucky to have this life.

The lights and the nog had me feeling much merrier.

I gave a big kiss to my Jack Russel Terrier.

With people and pets to love, how lucky am I!

Happy Holidays to all and to all a good night!

10 reactions 1 comment
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‘Twas a Night With My M.S. (a poem)

‘Twas a Night With My M.S.

‘Twas a night with my MS as I limped through the house,

I lose my balance a lot so I walked near the couch.

The droop of my chest and my belly below,

Said I was further from young and closer to old.

Two stockings were pinned to the mantel with care.

The third was missing. I don’t know where.

“Don’t forget the cookies!” came a voice in my head,

They need to be covered before going to bed.

As I walked to the kitchen I heard several snaps,

The usual sound from my angry knee caps.

Then I tripped on my foot and dropped the cookie platter.

It bounced on the floor with loud metallic clatter.

Well, I guess I was going just a little too fast.

In the morning I’ll just have to make a new batch.

I sat on my walker to assess my stubbed toe,

Then picked up the cookies and crumbles below.

When what to my wondering eyes should appear?

But the missing stocking behind a decorative reindeer!

I wished I were a little more steady and quick,

Then my arm muscle spasmed – the stocking got flicked!

But where did it go? Ah now I see.

I had aimed toward the mantel but it laid at my feet.

I laughed when I saw it in spite of myself.

Then laid it next to my Elf on the Shelf.

I thought of the dinner I had already planned,

Sweet taters, salad, a nice honey ham.

The family will be here tomorrow at 3:00.

I clenched my kegals ‘cause I needed to pee.

I picked up my speed as I dashed down the hall.

Saying “Don’t you dare pee! Don’t you dare fall!”

I made it in time! A miracle at that!

I smiled in the mirror and gave my shoulder a pat.

My health is very important to me.

So I checked my medicinal inventory:

If I ran out of meds it would be quite a shame.

I reviewed what I had and I muttered their names.

I had Avonex, Baclofen, and Vitamin D,

I had several anti-inflammatories.

Aspirin, Dalfampridine, Aleve, and Naproxen

Restless leg cream and Levothyroxine.

I had melatonin, magnesium, iron too,

Even a laxative to help me go poo.

Then I brushed my teeth with one hand on the wall.

Then continued my journey to the end of the hall.

I put on my pjs and climbed into bed,

Then adjusted the pillow under my head,

And the one at my back and between my knees,

I tried to relax, but again need to pee.

I forgot to turn off the twinkling lights on my roof.

I need to save money, so got up with an “Ooof”

I flipped off the lights and squinted up at the sky.

I had optic neuritis in my left eye.

But it’s much more cheery when the lights are on.

I said “Yes- I’m worth it!” flipped the switch back on.

Then I heard the scratching of one little paw.

My dog was after a Cookie crumb she saw.

All that I needed was a sick little dog.

I picked up the crumb then poured a nip of egg nog.

With so many goodies I’m looking quite thick,

But not too bad for disabled chick.

Everyone gets some joy and some strife.

I still felt quite lucky to have this life.

The lights and the nog had me feeling much merrier.

I gave a big kiss to my jack russel terrier.

And with people to love how lucky am I!

Happy holidays to all and to all a good night!

4 reactions 3 comments
Post

I’m new here!

Hi, my name is Christine. I'm here because I have been diagnosed with #OpticNeuritis and #relapsingremitingmultiplesclerosis.
A family member directed me to look up MS Societies in my local area and fell upon #nationalmssociety where I found #MightyTogether .

4 reactions 4 comments
Post

I'm new here!

Hi, my name is Bagofcatsemily80. I'm here because I am reaching my 3 year mark from the day I was hospitalized for acute blindness (optic neuritis). At the time the neurology staff, mainly newly posted med students were very focused on an MS diagnosis and ruling out another more debilitating form I think it was NM. In the end my vision was restored after 3 days on IV solumedrol. I was given no diagnosis and followed up with both neuro-opthamologist and neurologist.

the thing is, my blindness episode began to take root on the last week of a 3 week stay in a beach cottage that was infested with ticks. It was in Orient, NY which just so happens to be a short boat ride Lyme, CT. At the hospital my Lyme tests were negative. I still to this day believe it was a tick bite.

I do not believe this was my first encounter with tick bites either. As a young girl, I spent 12 endless summers running through the woods of an area of Pennsylvania known for its dense deer and tick population.

I get migraines nearly every afternoon on both sides of the bridge of my nose, I have to lock myself in a cold dark room because it’s not the just the light but unbearable sound of my lovely family’s voices that can make me mean. I use a Neil sinus rinse bottle because it feels like there are rocks in my sinuses, after I use the Flonase. I have sinusitis but I keep erupting into hot burning hives from antibiotics that previously were fine to take. On these migraine days my anxiety sky rockets, my knees burn up and ache and stomach gurgles and cramps. A little while later, I have an intense need to vomit or otherwise. After this last event, I usually feel light, almost giddy as I drift off in a very sweaty deep sleep.

am I just being bullheaded about my Lyme’s speculation?

#MightyTogether #Migraine
#OpticNeuritis

2 reactions 2 comments
Post

I'm new here!

Hi, my name is donnyrecovery. I'm here because
I have optic neuritis and lesions on my brain but I'm currently undiagnosed and in limbo and very scared#MightyTogether #MultipleSclerosis

6 reactions 4 comments
Post

I’m new here!

Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮‍💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔

#MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations

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State of Unbelief… #FND ? #nowayihavethat !

Hi! 😃💜💜
I’m new to the group!

Hope all of you are having a good day today! 😊💟

As the title states… I did NOT believe it when I received the #FNDdiagnosis !

I’m still having trouble grasping my neuros assessment of all my conditions & symptoms!….

Since I’ve been dealing with ALL my NEURO health issues since 2013 & she just met me last year!

— Can’t stand narrow minded tunnel vision non proactive & non helpful doctors! — #timetochangeneuros
#sotiredofthiscrap

Anybody else try to “forget” all their diagnosis ON THE DAILY??!!
— because it’s just too overwhelming & creates anxiety?

Anyway…
I try most days to push myself beyond the EXTREME pain & numerous symptoms & focus on ANYTHING ELSE to take my mind off my daily struggles & I’m sure you ALL do some of the same things!

— That’s it! lol 😜😎🥰

I hope each of you find JOY in your lives DAILY!😁😘

#timetorest
#HEDS #POTS #IIH #RheumatoidArthritis #DevicsDisease #wheelchairbound4x #OpticNeuritis #DoubleVision
#triplevision
#PCOS
#temporalpallorandscotomas
#GERD
#gastreoparesisSUCKS !! #PituitaryTumor #Diabetes #HBP #Asthma #COPD
#Anxiety #Depression #NeurogenicBladder #chronicUTIS #KidneyStones #toomanypillstotake !
#toomanydiagnosis !
#FOCUSONLIVINGLIFE !

GOD BLESS AND HELP US ALL!!💜❤️💗😇

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