Optic Neuritis

Hi Everyone! I am not sure where any of you are located, but on May 18th 2024 there is a National Alliance of Mental Health walk that I participate in every year.
I was wondering if there is anyone here who would like to join my team? My team is The Mighty Minds. :) We will walk to help stigma on Mental Illness. If anyone would like to join or donate to my team I will put the link below.

It would be so cool to have you guys there. I'd love for anyone to be a part of Mighty Minds!!!

www.namiwalks.org/participant/Rachel-Tepper

If the link doesn't work you can message me on here and we will figure it out. I'd love for you to join. ❤️

#MentalHealth #BipolarDepression #Depression #Anxiety #CushingsSyndrome #OpticNeuritis #MultipleSclerosis #Steroids #Sarcoidosis

I make a to do list every night before I go to bed yo see what I can accomplish the next day. Today I was able to get out of bed and meal prep for the rest of the week. I am proud because I started it and then went to lay down because of pain. But I got back up and finished it later. Small steps. :)
#ChronicPain #Depression #ChronicIllness #OpticNeuritis #CushingsSyndrome

Hi, my name is Kshirja Singh (shree). I'm looking for the humor while iam dealing NMOSD and Optic Neuritis. Iam partially blind but I see twice the funny side of my illness. Specially people's reactions.. priceless..

#MightyTogether

‘Twas a night with my M.S. as I limped through the house.

I lose my balance a lot so I walked near the couch.

The droop of my chest and my belly below,

Said I was further from young and closer to old.

The stockings were pinned to the mantel with care,

But one stocking was missing. I don’t know where.

“Don’t forget the cookies!” came a voice in my head.

They need to be covered before going to bed.

As I walked through the kitchen I heard several snaps,

The usual sound from my angry knee caps.

Then I tripped on my foot and dropped the cookie platter.

It bounced on the floor with loud metallic clatter.

Well I guess I was going just a little too fast.

In the morning I’ll just have to make a new batch.

I sat on my walker to assess my stubbed toe,

And looked at the cookies and crumbles below.

When what to my wondering eyes should appear,

But the missing stocking behind a decorative reindeer.

I wish I were a little more steady and quick.

Then my arm muscle spasmed and the stocking got flicked!

But where did it go? Ah now I see.

I had aimed at the mantel but it landed at my feet.

I laughed when I saw it in spite of myself,

Then laid it next to my Elf on the Shelf.

I thought of the dinner I had already planned.

Sweet taters, salad, and a nice honey ham.

The family would be here tomorrow at three.

I clenched my kegals because I needed to pee!

I picked up speed as I dashed down the hall,

Saying ‘Don’t you dare pee! Don’t you dare fall!’

I made it in time- a miracle at that!

I looked in the mirror and gave my shoulder a Pat.

My health is very important to me so I checked my medicinal inventory:

If I ran out of meds it would be quite a shame,

So I reviewed what I had and I muttered their names.

I had Avonex, Baclofen, and vitamin D,

I had several anti inflammatories.

Aspirin, Dalfampridine, Aleve, and Naproxin,

Restless leg cream and Levothyroxine.

I had melatonin, magnesium too,

Even a laxative to help me go poo.

Then I brushed my teeth with one hand on the wall,

And continued my journey to the end of the hall.

I put on my pj’s and climbed into bed,

Then adjusted the pillow under my head,

And the one at my back and between my knees.

I had tried to relax, but again need to pee.

I forgot the twinkling lights on my roof!

I need to save money, so got up with an “Oof”

I flipped off the lights and looked up at the sky.

I have optic neuritis in my left eye.

Then I heard the scratching of one little paw.

My dog was after a cookie crumb she saw.

All that I needed was a sick little dog.

I picked up the crumb then had a nip of egg nog.

With so many goodies I was looking quite thick,

But not too bad for a disabled chick.

Everyone gets some joy and some strife.

I still felt quite lucky to have this life.

The lights and the nog had me feeling much merrier.

I gave a big kiss to my Jack Russel Terrier.

With people and pets to love, how lucky am I!

Happy Holidays to all and to all a good night!

‘Twas a Night With My M.S.

‘Twas a night with my MS as I limped through the house,

I lose my balance a lot so I walked near the couch.

The droop of my chest and my belly below,

Said I was further from young and closer to old.

Two stockings were pinned to the mantel with care.

The third was missing. I don’t know where.

“Don’t forget the cookies!” came a voice in my head,

They need to be covered before going to bed.

As I walked to the kitchen I heard several snaps,

The usual sound from my angry knee caps.

Then I tripped on my foot and dropped the cookie platter.

It bounced on the floor with loud metallic clatter.

Well, I guess I was going just a little too fast.

In the morning I’ll just have to make a new batch.

I sat on my walker to assess my stubbed toe,

Then picked up the cookies and crumbles below.

When what to my wondering eyes should appear?

But the missing stocking behind a decorative reindeer!

I wished I were a little more steady and quick,

Then my arm muscle spasmed – the stocking got flicked!

But where did it go? Ah now I see.

I had aimed toward the mantel but it laid at my feet.

I laughed when I saw it in spite of myself.

Then laid it next to my Elf on the Shelf.

I thought of the dinner I had already planned,

Sweet taters, salad, a nice honey ham.

The family will be here tomorrow at 3:00.

I clenched my kegals ‘cause I needed to pee.

I picked up my speed as I dashed down the hall.

Saying “Don’t you dare pee! Don’t you dare fall!”

I made it in time! A miracle at that!

I smiled in the mirror and gave my shoulder a pat.

My health is very important to me.

So I checked my medicinal inventory:

If I ran out of meds it would be quite a shame.

I reviewed what I had and I muttered their names.

I had Avonex, Baclofen, and Vitamin D,

I had several anti-inflammatories.

Aspirin, Dalfampridine, Aleve, and Naproxen

Restless leg cream and Levothyroxine.

I had melatonin, magnesium, iron too,

Even a laxative to help me go poo.

Then I brushed my teeth with one hand on the wall.

Then continued my journey to the end of the hall.

I put on my pjs and climbed into bed,

Then adjusted the pillow under my head,

And the one at my back and between my knees,

I tried to relax, but again need to pee.

I forgot to turn off the twinkling lights on my roof.

I need to save money, so got up with an “Ooof”

I flipped off the lights and squinted up at the sky.

I had optic neuritis in my left eye.

But it’s much more cheery when the lights are on.

I said “Yes- I’m worth it!” flipped the switch back on.

Then I heard the scratching of one little paw.

My dog was after a Cookie crumb she saw.

All that I needed was a sick little dog.

I picked up the crumb then poured a nip of egg nog.

With so many goodies I’m looking quite thick,

But not too bad for disabled chick.

Everyone gets some joy and some strife.

I still felt quite lucky to have this life.

The lights and the nog had me feeling much merrier.

I gave a big kiss to my jack russel terrier.

And with people to love how lucky am I!

Happy holidays to all and to all a good night!

Hi, my name is Christine. I'm here because I have been diagnosed with #OpticNeuritis and #relapsingremitingmultiplesclerosis.
A family member directed me to look up MS Societies in my local area and fell upon #nationalmssociety where I found #MightyTogether .

Hi, my name is Bagofcatsemily80. I'm here because I am reaching my 3 year mark from the day I was hospitalized for acute blindness (optic neuritis). At the time the neurology staff, mainly newly posted med students were very focused on an MS diagnosis and ruling out another more debilitating form I think it was NM. In the end my vision was restored after 3 days on IV solumedrol. I was given no diagnosis and followed up with both neuro-opthamologist and neurologist.

the thing is, my blindness episode began to take root on the last week of a 3 week stay in a beach cottage that was infested with ticks. It was in Orient, NY which just so happens to be a short boat ride Lyme, CT. At the hospital my Lyme tests were negative. I still to this day believe it was a tick bite.

I do not believe this was my first encounter with tick bites either. As a young girl, I spent 12 endless summers running through the woods of an area of Pennsylvania known for its dense deer and tick population.

I get migraines nearly every afternoon on both sides of the bridge of my nose, I have to lock myself in a cold dark room because it’s not the just the light but unbearable sound of my lovely family’s voices that can make me mean. I use a Neil sinus rinse bottle because it feels like there are rocks in my sinuses, after I use the Flonase. I have sinusitis but I keep erupting into hot burning hives from antibiotics that previously were fine to take. On these migraine days my anxiety sky rockets, my knees burn up and ache and stomach gurgles and cramps. A little while later, I have an intense need to vomit or otherwise. After this last event, I usually feel light, almost giddy as I drift off in a very sweaty deep sleep.

am I just being bullheaded about my Lyme’s speculation?

#MightyTogether #Migraine
#OpticNeuritis

Hi, my name is donnyrecovery. I'm here because
I have optic neuritis and lesions on my brain but I'm currently undiagnosed and in limbo and very scared#MightyTogether #MultipleSclerosis