Systemic Lupus Erythematosus

So I was on a pretty heafty dose of prednisone last year during the summer die to my Lupus. I had very limited mobility and it was overall a pretty terrible experience.
Anyway- I ended up gaining a lot of weight very quickly, and it’s become very difficult to loose.

I used to be 190LBS, I’m 5’6, with broad shoulders. So I looked pretty healthy, and I was very confident and proud of myself!

But because of my Lupus and medications like prednisone, I’m now 235LBS and I just feel awful. It seems like the prednisone has made it so much harder to loose weight., even thought I have stoped taking it months ago!
I’ve been dealing with depression and anxiety, as well as overall crippling fatigue- people, including doctors- keep telling me “just get moving! Go on walks! Eat healthy! Don’t eat processed foods!” But they seem to forget I struggle with chronic pain, horrible fatigue, exercise and heat intolerance and an overall lack of good days.

So how on earth am I supposed to loose weight? So I can feel better about myself again? I’m loosing hope with it, and I just feel so lost and lonely and exhausted. I’m not flailing anymore,so why do I feel so bad?

Chronic illness is becoming too much for me.
#Lupus #LupusNephritis #SystemicLupus #SystemicLupusErythematosus #ChronicFatigue #ChronicPain #KidneyDisease #AntiphospholipidSyndrome #Vasculitis #Depression #Anxiety #Prednisone #CheckInWithMe #PTSD

So I was on a pretty heafty dose of prednisone last year during the summer die to my Lupus. I had very limited mobility and it was overall a pretty terrible experience.
Anyway- I ended up gaining a lot of weight very quickly, and it’s become very difficult to loose.

I used to be 190LBS, I’m 5’6, with broad shoulders. So I looked pretty healthy, and I was very confident and proud of myself!

But because of my Lupus and medications like prednisone, I’m now 235LBS and I just feel awful. It seems like the prednisone has made it so much harder to loose weight., even thought I have stoped taking it months ago!
I’ve been dealing with depression and anxiety, as well as overall crippling fatigue- people, including doctors- keep telling me “just get moving! Go on walks! Eat healthy! Don’t eat processed foods!” But they seem to forget I struggle with chronic pain, horrible fatigue, exercise and heat intolerance and an overall lack of good days.

So how on earth am I supposed to loose weight? So I can feel better about myself again? I’m loosing hope with it, and I just feel so lost and lonely and exhausted. I’m not flailing anymore,so why do I feel so bad?

Chronic illness is becoming too much for me.
#Lupus #LupusNephritis #SystemicLupus #SystemicLupusErythematosus #ChronicFatigue #ChronicPain #KidneyDisease #AntiphospholipidSyndrome #Vasculitis #Depression #Anxiety #Prednisone #CheckInWithMe #PTSD

Hi, my name is N8TRGRL_24. I'm here because I was recently diagnosed with SLE. Beginning my education on this diagnosis and how to best manage, especially my diet and exercise routines to avoid triggering fatigue and inflammation overall.

#MightyTogether #Lupus

Hi, does anyone have advice on pregnancies with Lupus? I’m 9 weeks and have SLE it’s control and has been for a while but I still have fatigue and crazy morning sickness. How have others done throughout pregnancy and delivery? Any recommendations? We’re you able to work through out your whole pregnancy? I’ve been doing 4 days a week only lasting 5 or 6 hours a day with a desk job just due to being sick and crazy fatigue. Just wondering what to expect and how people do it all?

Good Afternoon to all. I am a veteran aged 59 years from Kerala retired from regular army during Feb 2007. I had multiple episodes of Mania onset during Apr 1996 and finally diagnosed as Manic depressive psychosis, survived with after treated with Lithium. Ater my discharge also had two relapses. During Apr 2018, my doctor instructed to stop alcohol consumption for a permanent solution to contain the illness under medication (Lithium). My SLE levels are 0.0.0.4 to 0.0.0.5 Meq/Ltr. I told him that I cant stop in take of alcohol mostly two to three days a week in moderate and taking lithium 600mg at night. He stopped treating me. I am continuing with my life style and lithium treatment my own since then and fine with the above mentioned lithium level and Creatine. I request my fellow colleagues not to copy me please. Take advise of doctors. I am sure I am neither doing right nor wrong. I am not sure how long this go. I am working with a Financial Company since 2009 and living with wife and two daughers....

I had a biopsy and bloodwork that confirms Systemic Lupus. I have another month before I am able to see a RA doctor. Appointments are 3 months out for new patients. My dermatologist prescribed 40 mg of Prednisone daily and 200 mg of Hydroxychloroquine. I have been in a flare since August. My hair is falling out daily. It is the full strand not breakage. The bald spots are the size of a nickel. Does anyone know how to treat this?

Hi, my name is MrsLeeC_93. I'm here because
I have SLE#MightyTogether