Thoracic Outlet Syndrome

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I'm new here!

Hi, my name is _CB_. I'm here because I am looking for any support really I’m struggling with all the doc appointments and not knowing if my ATOS is about to give me an bad clot .. I’m waiting for my consult with the arrival surgeon ASAP .. I don’t know what to do with myself till then..

#MightyTogether #ThoracicOutletSyndrome #ADHD #Scoliosis

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Constant , never-ending Muscle Spasms - any suggestions what will help? #EhlersDanlosSyndrome

Hello fellow zebra warriors, what helps with muscle spasms?? I have constant spasms, seems like years now, always within my upper chest and underarms and upper shoulders. #ThoracicOutletSyndrome #EhlersDanlosSyndrome

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#Migraine #JointHypermobilitySyndrome #ThoracicOutletSyndrome #PosturalOrthostaticTachycardiaSyndrome

I have been diagnosed with POTS, hypermobility, CRPS, thoracic outlet syndrome and (a few other things that may or may not be related).

My new neurologist diagnosed me with migraines. I believe that diagnosis fits better than occipital neuralgia, which is what previous neurologist diagnosed me as having.

My new neurologist prescribed Emgality because I have been having 2-3 moderate to severely painful migraines per week. I just took my first double dose today. I was wondering if anyone here has taken it, what side effects (if any) you experienced, and did it work for you?

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Need advice - How do you force yourself to exercise even when in pain?

Hi Everyone! So I have chronic pain in my hands, chest, and arms from Thoracic Outlet Syndrome. My doctors have always told me that I need to exercise and keep my muscles in my arms, shoulders, core, and chest active and strong...but it's so hard. I have such a hard time exercising through the pain, and even just getting up the motivation to try. What do you do? How do you do it if you've figured out a mindset that works?

#Askingforhelp #Exercise #Motivation

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I'm new here!

Hi, my name is beckthewreck. I'm here because I have thoracic outlet syndrome and a few other conditions and I'm looking for community.

#MightyTogether

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So tired, in so much pain #Painsomnia #ChronicPain #ThoracicOutletSyndrome

Things have been better the last month but this past week has been hell. I haven’t been able to sleep the past three nights because of terrible nerve pain. It doesn’t matter how many pain meds I take or what pain relief methods I use, nothing works. I hate this. I know when you have chronic pain this is just a part of life, but this is just difficult to get through. Especially with no sleep. I feel like the only way I get better is when I can rest and sleep. Just wanted to share because I don’t have many people who understand. 😔

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