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What it's like having CPTSD w/other invisible illnesses, being in crisis mode and afterwards, feeling awkward having reached out in a post.

🚨Possible Trigger Warning

I even hesitate posting this. Yesterday I was in full blown crisis triggered by an MRI radiology tech. I don't have claustrophobia, I have multiple head injuries from an IPV assault yrs ago. To summarize, after reporting the incident and getting back home, I thought it might help calm the flashbacks and de-escalate my anxiety if I could share what happened.

Until late yesterday evening, I was on a #Depression group in the Mighty community. It could be the TBI, the concussions or both, but when I'm in a severe head syndrome flare coupled with a crisis mode, it's nearly impossible to regulate content brevity.

Most comments were kind. One however was difficult to interpret, but seemed to be saying that I should have avoided referencing certain things that caused me to go into crisis mode. As politely as I could I responded that if I understood correctly, I apologized if I caused any trigger. I then shut down emotionally and left the group that up until then, had been helpful to me.

You know, I see posts where people share the most open portions of their souls in this community. Folks who are hurting so badly that they're in severe crisis on a myriad of levels. Rarely if ever do I see them being shot down in the responses by others.

So in my case then because it primarily relates to IPV and it comes to me sharing what's triggered my #Depression or #Anxiety ... it seems as if that's where the blatant random discrimination kicks in? It leaves those of us similarly affected left out in the cold. It's certainly not coming from everyone in the community, but I'm getting tired of it.

Isn't this supposed to be a safe place platform for all? Otherwise what's the benefit of these groups if we can't share why we're struggling in crisis? I don't want to become so disillusioned that I pull away from The Mighty community entirely.

#MightyTogether #MentalHealth
#ADHD #Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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Chronic Migraines and Mental Health

If you have endured the struggle of chronic migraines and headaches, you know firsthand how awful the experience is. There is a lot to unpack when it comes migraines. For example, simply the anxiety of not knowing when the next attack is going to happen can be paralyzing for some. Or, the impact that chronic migraines can have on relationships. For others, it may be the frustration of people not being able to see their suffering on the outside, so they doubt you, or the severity of this experience.

What people don't often know if they don't suffer from migraines is that the experience of a migraine is an entire event. It's far more than just a headache for most. Many people struggle with auras (seeing visual flashes or patterns during an attack, being sensitive to light and sound, et al). Some will become confused and unable to speak or think clearly, a sort-of temporary aphasia. Vestibular migraines can cause issues with balance, walking, talking, or vertigo, and more. Each person's experience of migraine varies from one to the next (and triggers also vary), which is part of the reason that medical professionals have found it hard to treat and cure migraines. There are more options available nowadays. But, for many, it's still not enough.

Chronic Migraines and Chronic Pain: More than a medical issue

In my practice, I've worked with many people who struggle with chronic migraines and headaches. While people often tend to believe that migraines and headaches are purely a medical issue, chronic pain has a long history of being linked with mental health, as well. The two -- medical and mental health -- are often intertwined when it comes to the experience of chronic pain. Sure, sometimes migraines and headaches can have more of a medical origin. Such as the result of a traumatic brain injury, or hormonal shifts, et al. However, it's also become known that people can be born with a predisposition to migraines or headaches (genetics), and then events in life can trigger it.

For many, these pain triggers can be heavily tied together with mental health.

Chronic pain goes beyond just headaches and migraines. It can be back pain, or Irritable Bowel Syndrome (IBS), digestive issues, and more. Stress, for one example, can cause unpleasant shifts to happen in the body even for people who aren't predisposed to an issue. Think of the times you've been stressed or anxious and experienced the tension in your body, or mouth drying up, body temperature increasing, stomach churning, head start to hurt, your upper back and neck starting to tighten, chest tightening, higher and more rapid breathing, etc. Not only stress and anxiety, but anger, depression, or various types of trauma (not only large traumas, but a series of relational traumas, such as bullying) can have an impact. The body not only responds to present stimuli and triggers, but the body has a way of storing old experiences when they are not emotionally processed. This storage of old emotional experiences can often trigger chronic pain into effect when the emotions either build up enough in the body, or when they call back to a parallel experience (and/or can exacerbate what's already possibly present medically into greater severity or frequency of attack).

Therapy as a treatment for Migraine Headaches

The interconnection between medical and mental health is actually positive for many. This means that people who struggle with chronic migraines and headaches have more options available to them than only medical. I have seen people reduce their frequency and severity of chronic migraines and headaches through therapy. As people, we store so much of our emotional experiences and carry them often without even knowing it. Eventually, we can't overlook them anymore when we start to feel these stored experiences. You may find yourself suddenly experiencing anxiety and panic attacks, or constant body stress, or physical and mental overwhelm that never used to be so present. The same goes with chronic pain.

For the sake of clarity, I'm not suggesting that everyone's chronic migraines are mental health related, however I've seen that it's also commonly the case that medical and mental health works together for chronic issues that don't have an otherwise clear medical explanation. Similarly to how depression can often be helped most by a combination of medication and therapy, I've seen with chronic migraines and headaches that a combination of neurological treatment and deeper psychotherapy can be more helpful than many might realize.

Unfortunately, one of the most difficult stigmas I have seen is the fear that acknowledging mental health triggers for migraines will somehow indicate that the migraines are "all in their head". Something many migraine sufferers have been told throughout their lives, which has been traumatic and dismissive of incredibly painful and lonely experiences of suffering. However, the struggles, the pain, the torture, the accompanying emotional and life impact is all very real. The underlying causes for these struggles, however they are triggered and reinforced over time, is what needs the attention and can ultimately lead to relief.

#Migraine #ChronicMigraines #Headache #MentalHealth #ChronicPain

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Must socialize but at a distance because people can be irritating 😶‍🌫️

I iz peopling • Ew, people *breaks out in cold sweat when host asks "May I take your coat?"

#MightyTogether #MentalHealth
#ADHD #Trauma #Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#MightyPets #TraumaticBrainInjury

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Self-Care is vital for Survivors

Literally and figuratively, remaining healthy is the best way to provide our bodies with the energy needed to function at an optimum level. So too, our psyche needs fed healthy amounts of support. Healthy in ♾️ healthy out.

#MightyTogether #MightyPets #MentalHealth #ADHD #Trauma
#Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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Kitteh just gave me a smooch 😻

Niklas Squishy Kitteh is seriously an Emotional Therapy champion. For a number of days now I've been in a crapload of pain. First surgery is in early July, and he sticks to me like super glue. He's such a punkin.

#Anxiety #Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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Being sidelined from crafting prevents me from enhancing my mindfulness

At the end of Nov I was experiencing some brain fog, fell and injured my left wrist/hand while suffering another concussion. I've already had 3 MRIs on my wrist. The next one is Tues, but this time it'll be on my neck to see if there's a pinched nerve directly correlating to my wrist.

I'm trying to remain calm, thankful for the VA and all of the wonderful care I receive. It's just with this situation, the unavoidable delays can been a bit frustrating. What's really lousy is that at first I could cross stitch with my right hand, but now my eyes and head syndrome are worse so I'm hosed. 😫

It'll all be ok I'm sure. Grateful to be able to feel, and have this platform to learn and share with others.

#MentalHealth #ADHD #Trauma
#Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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Misconceptions Of Mental Illness Can Put Put The Public At Risk 🙄

Yesterday I responded to a post regarding Narcissism, as I am a survivor of narcissistic abuse (Hitchcock style, seriously). Over the past few yrs I've uncovered instances where individuals who have studied a particular illness extensively, claim with all certainty that they've thoroughly captured all of its aspects.

This is extremely hard to deal with, because often missing facts perpetuate social vulnerability. Why vulnenerability? Because predators hunt and potential victims can be better equipped for self-defense if they know what to watch out for.

Has anyone else has run into a similar situation for this or any other mental health illness(s)? Dr. Ousterhout, what type of mindfulness approach would you recommend in this type of situation? Any other thoughts you could share would be greatly appreciated. Thanks!

#MentalHealth
#ADHD #Trauma #Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine

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Survivors Typically Develop A Unique Sense Of Humor

Sure, I can acclimate to various situations. However I'm guessing that like most of you with #TraumaticBrainInjury and #ComplexPosttraumaticStressDisorder my brain can come up with some spontaneous twisted funny stuff with a gentle dose of sarcasm that'll make me snort-laugh 5 minutes after I've let it out. I dunno, maybe it's my #ADHD 🐿 or all of these conditions wrapped into one oddly wrapped package of old comics. 😁 One thing's for sure, it's definitely not boring. 🫠

#MightyTogether #MentalHealth
#Trauma #Anxiety #Depression
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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It's A True Blessing Being Able To Feel

I fully believe that everything happens for a reason. God's plan has been in place and the only modifier is our free will. Though my husband and I are both looking at forthcoming surgeries soon, we're so grateful to be able to feel. How glorious to be above ground to enjoy another day full of His blessings, and share our testimonies!

Wishing you all a day full of peace and fulfilling reflection in the Lord's healing word. 🕊📖💜

#MentalHealth
#ADHD #Trauma #Anxiety #Depression
#ComplexPosttraumaticStressDisorder
#TraumaticBrainInjury
#PostconcussionSyndrome
#ParoxysmalHemicrania
#ChronicVestibularMigraine
#Fibromyalgia
#DegenerativeDiscDisease #ComplexRegionalPainSyndrome #Osteoarthritis

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