allymfinn

@allymfinn
Community Voices

does anyone else wake up with consistent pain and stiffness in their mid back?

7 people are talking about this
Community Voices

When Life Gives You PoTS

<p>When Life Gives You <a href="https://themighty.com/topic/postural-orthostatic-tachycardia-syndrome/?label=PoTS" class="tm-embed-link  tm-autolink health-map" data-id="5b23ceac00553f33fe99a8c8" data-name="PoTS" title="PoTS" target="_blank">PoTS</a></p>
4 people are talking about this
Community Voices

What do you do when you can’t sleep?

<p>What do you do when you can’t sleep?</p>
153 people are talking about this
Community Voices

What is something new you want to try that you feel will benefit you in your health journey?

<p>What is something new you want to try that you feel will benefit you in your health journey?</p>
21 people are talking about this
Community Voices

Sad and depressed

I have been suffering from sadness and grief at everything I can't do now. # I wanted to see if a dog would help me with my physical and mental condition # But my husband said no to the dog 😢 What do I do?

10 people are talking about this
Community Voices

Upswing

After months of bed-bound difficulties (rapid gastric emptying, POTS-like issues, subluxations & injury of my knee, neck, hip), I’m in one of those euphoria upswings of decent health. I’m grateful to move without debilitating pain, complete chores, be social, and have renewed hope.
Nothing changed magically. I work daily on my health, trying to get diagnoses & treatment, resting, cardio everyday (thankful I found a pedal machine that lets me move even when my body doesn’t want to), meditating, increased protein intake, salt & fluids, losing weight, and researching. I also let go of daily plans/expectations and try to just focus on what is in front of me.
I’m a little POTS-y today, so will rest more. Also a little gurgle in my gut, so castor oil pack treatment as well.
Also just finished a check-in appt with my therapist. We book my phone appointment every 3-4 weeks. It gives me comfort knowing it is there. Sometimes I need her to help me shift perspective, hold me accountable, or to help me give myself permission to do what my body needs. Sometimes I get to just brief her on how well all my strategies and tools are working for me.
I have peace, grattitude, and hope. Things are getting better, and I feel better. My wish is that you get these beautiful breaks too, and they fill you with light, love, resilience, and strength too.
#EDS #HEDS #POTS #gastricissues #Subluxations #grateful

1 person is talking about this
Community Voices

Sad and depressed

I have been suffering from sadness and grief at everything I can't do now. # I wanted to see if a dog would help me with my physical and mental condition # But my husband said no to the dog 😢 What do I do?

10 people are talking about this
Community Voices

What is something new you want to try that you feel will benefit you in your health journey?

<p>What is something new you want to try that you feel will benefit you in your health journey?</p>
21 people are talking about this
Community Voices

# Ouch!

# my left hip went out of place on me and I was just standing still . Darn my hip and darn those subluxations! God was with me and I didn’t fall!

11 people are talking about this
Community Voices

Stretch marks?

Do any other HSD/hEDS young people get more and more stretch marks all the time even though nothing appears to be changing with t their body size wise? I’m 18 and I’m not growing anymore and I haven’t been gaining much weight, but I keep getting stretch marks in strange places? I know stretch marks are a part of hypermobility disorders, but it just seems a bit excessive… Are they going to slow down/stop? Is there anything I can do for them? They fade pretty well, but it would be nice to help my skin out by stopping them from happening so much :/

9 people are talking about this