sofie

@amuseabletiger
working on my juggling skills… with spoons | nature person, definitely an extrovert, and cannot live without fuzzy socks | diagnosed hEDS, POTS, CRPS I, gastroparesis, celiac disease, narcolepsy, raynaud’s, and dysautonomia
Community Voices

favorite brace/splint brands or companies? #EhlersDanlosSyndrome #ChronicPain

i recently started working with a physical
therapist who has a lot of experience with
treating hEDS and other connective tissue
disorders. she said that though she is
typically not a big fan of braces/splints, my joint instability is currently at a point where she wants me to get a few stability aids, at least until we’ve built up enough slow-twitch muscle strength to support my joints better. she recommended i get wrist braces with an additional thumb brace attached (do those have a name? they're the ones that are basically a two-in-one brace for both your wrist and thumb), and potentially ankle braces and a brace for my
right knee. i’m also hoping to talk to her about silver ring splints, because my fingers are officially in major need of some help, lol.
anyway, she didn't have a specific recommendation for a brand or brands for braces/splints, and there are sooo many out there (though i'm not talking about eds specific ones- i haven't really found any of those, except for a few companies that make silver ring splints specific to eds patients). does anyone have a brand or company that makes braces or splints that they really like or have had a lot of success with? i really appreciate any advice/suggestions you might have!!

9 people are talking about this
Community Voices

favorite brace/splint brands or companies? #EhlersDanlosSyndrome #ChronicPain

i recently started working with a physical
therapist who has a lot of experience with
treating hEDS and other connective tissue
disorders. she said that though she is
typically not a big fan of braces/splints, my joint instability is currently at a point where she wants me to get a few stability aids, at least until we’ve built up enough slow-twitch muscle strength to support my joints better. she recommended i get wrist braces with an additional thumb brace attached (do those have a name? they're the ones that are basically a two-in-one brace for both your wrist and thumb), and potentially ankle braces and a brace for my
right knee. i’m also hoping to talk to her about silver ring splints, because my fingers are officially in major need of some help, lol.
anyway, she didn't have a specific recommendation for a brand or brands for braces/splints, and there are sooo many out there (though i'm not talking about eds specific ones- i haven't really found any of those, except for a few companies that make silver ring splints specific to eds patients). does anyone have a brand or company that makes braces or splints that they really like or have had a lot of success with? i really appreciate any advice/suggestions you might have!!

9 people are talking about this
Community Voices

favorite brace/splint brands or companies? #EhlersDanlosSyndrome #ChronicPain

i recently started working with a physical
therapist who has a lot of experience with
treating hEDS and other connective tissue
disorders. she said that though she is
typically not a big fan of braces/splints, my joint instability is currently at a point where she wants me to get a few stability aids, at least until we’ve built up enough slow-twitch muscle strength to support my joints better. she recommended i get wrist braces with an additional thumb brace attached (do those have a name? they're the ones that are basically a two-in-one brace for both your wrist and thumb), and potentially ankle braces and a brace for my
right knee. i’m also hoping to talk to her about silver ring splints, because my fingers are officially in major need of some help, lol.
anyway, she didn't have a specific recommendation for a brand or brands for braces/splints, and there are sooo many out there (though i'm not talking about eds specific ones- i haven't really found any of those, except for a few companies that make silver ring splints specific to eds patients). does anyone have a brand or company that makes braces or splints that they really like or have had a lot of success with? i really appreciate any advice/suggestions you might have!!

9 people are talking about this
Community Voices

favorite brace/splint brands or companies? #EhlersDanlosSyndrome #ChronicPain

i recently started working with a physical
therapist who has a lot of experience with
treating hEDS and other connective tissue
disorders. she said that though she is
typically not a big fan of braces/splints, my joint instability is currently at a point where she wants me to get a few stability aids, at least until we’ve built up enough slow-twitch muscle strength to support my joints better. she recommended i get wrist braces with an additional thumb brace attached (do those have a name? they're the ones that are basically a two-in-one brace for both your wrist and thumb), and potentially ankle braces and a brace for my
right knee. i’m also hoping to talk to her about silver ring splints, because my fingers are officially in major need of some help, lol.
anyway, she didn't have a specific recommendation for a brand or brands for braces/splints, and there are sooo many out there (though i'm not talking about eds specific ones- i haven't really found any of those, except for a few companies that make silver ring splints specific to eds patients). does anyone have a brand or company that makes braces or splints that they really like or have had a lot of success with? i really appreciate any advice/suggestions you might have!!

9 people are talking about this
Community Voices

favorite brace/splint brands or companies? #EhlersDanlosSyndrome #ChronicPain

i recently started working with a physical
therapist who has a lot of experience with
treating hEDS and other connective tissue
disorders. she said that though she is
typically not a big fan of braces/splints, my joint instability is currently at a point where she wants me to get a few stability aids, at least until we’ve built up enough slow-twitch muscle strength to support my joints better. she recommended i get wrist braces with an additional thumb brace attached (do those have a name? they're the ones that are basically a two-in-one brace for both your wrist and thumb), and potentially ankle braces and a brace for my
right knee. i’m also hoping to talk to her about silver ring splints, because my fingers are officially in major need of some help, lol.
anyway, she didn't have a specific recommendation for a brand or brands for braces/splints, and there are sooo many out there (though i'm not talking about eds specific ones- i haven't really found any of those, except for a few companies that make silver ring splints specific to eds patients). does anyone have a brand or company that makes braces or splints that they really like or have had a lot of success with? i really appreciate any advice/suggestions you might have!!

9 people are talking about this
Community Voices

You know you’re an EDS patient when…

<p>You know you’re an <a href="https://themighty.com/topic/ehlers-danlos-syndrome/?label=EDS" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7a00553f33fe991e01" data-name="EDS" title="EDS" target="_blank">EDS</a> patient when…</p>
29 people are talking about this
Community Voices

sleep issues

does anyone have any tips and tricks on sleeping comfortably with sore joints? my hips pop out if i lay on my back, and are achy if i lay on my side

6 people are talking about this
Community Voices

I'm new here!

Hi, my name is MyGalSAL. I'm here because I was diagnosed with ADHD at 61. I'm probably autistic, dysgraphia and dyscalculia both scream my name.

#MightyTogether

5 people are talking about this
Community Voices

ways to quietly vent/let some feelings out, other than journaling?

i’ve been so frustrated and upset lately, with both the lack of available doctors and the lack of response from doctors i have seen, other than the select few doctors i’ve been seeing for a while and truly trust. in order to properly function and to be able to deal with the whole finding-new-doctors-that-are-also-practically-nonexistent thing, i know i’ve got to find some healthier ways (healthier than either crying forever or trying to ignore everything) of letting myself vent/feel. but i don’t like journaling as lately it’s been hurting my wrists and thumbs SO much to write. does anyone have some non-movement non-traditional-journaling ideas for how to do this? i really appreciate any ideas out there! sometimes chronic illness is a whole giant whirlwind of physical and emotional stuff! #MightyTogether #EhlersDanlosSyndrome #Dysautonomia #SpoonieProblems #ChronicIllness #WritingThroughIt #MentalHealth

16 people are talking about this
Community Voices

Medicine M&Ms

<p>Medicine M&Ms</p>
1 person is talking about this